Table 1 Characteristics of studies included in the scoping review and decision-related outcome measurement instruments used
Lead author name | Publication date | Setting | Type of decision | Self or proxy decision | Outcome domains | Outcome measurement instrumentsa |
|---|---|---|---|---|---|---|
Juraskova, I et al. [36] | 2015 | Oncology Australia and New Zealand | Participation in breast cancer trial | Self | Anxiety/depression; attitudes towards participating; decisional conflict; involvement preferences; actual (objective) understanding; perceived (subjective) understanding | Including: adapted information style questionnaire; CPS; DCS; QuIC |
Politi, MC et al. [37] | 2016 | Oncology USA | Participation in cancer trial (multiple cancers and trials) | Self | Clarity of opinion about participating; decision readiness; decisional conflict; intent to participate; knowledge; self-efficacy | Including: questionnaire of eleven objective knowledge items; low literacy version DCS; decision readiness measured on a single-item 5-point scale |
Sundaresan, P et al. [38] | 2017 | Oncology Australia and New Zealand | Participation in prostate cancer trial | Self | Anxiety/depression; decisional regret; decisional conflict; knowledge | Including: objective knowledge measured using adapted 11-point and 7-point knowledge scales; DCS; QuIC; MDMIC with additional items related to clinical trials; DRS; SWDS |
Robertson, EG et al. | 2019 | Oncology Australia | Participation in acute lymphoblastic leukaemia trial (children and young people) | Self | Acceptability of DA; decisional conflict; emotional safety; feasibility; involvement in decision-making; knowledge | Including: preferred and actual decision‐making role (purpose designed); DCS for parents (purpose designed for adolescents), FCC‐HL‐AYA (adapted for parents and adolescents); adapted versions QuIC |
Cox, C et al. [26] | 2012 | Intensive care USA | Prolonged mechanical ventilation provision in critical illness | Proxy | Acceptability of DA; conflict with physicians; decisional conflict; feasibility; physician-surrogate discordance; quality of communication; trust in physician; comprehension of relevant information | Including: QOC; DCS |
Einterz, S et al. [27] | 2014 | Nursing homes USA | Treatment decisions for a person with advanced dementia | Proxy | Clinician–surrogate concordance; involvement in decision-making; knowledge; quality of communication; satisfaction with care | Including: QOC; knowledge assessed with 18 true/false items |
Hanson, L et al. [28] | 2011 | Nursing homes USA | Feeding options in advanced dementia | Proxy | Clinician–surrogate concordance; decisional regret; frequency of communication with health care providers; involvement in decision-making; knowledge | Including: DCS; knowledge assessed using 19 true/false items; SWDS; DRS |
Snyder, A et al. [29] | 2013 | Nursing homes USA | Feeding options in advanced dementia | Proxy | Decisional conflict; knowledge | Including: knowledge assessed using 19 true/false items; DCS |
White, D et al. [33] | 2012 | Intensive care USA | Decisions about treatment options in critical illness | Proxy | Acceptability of DA; decisional confidence; feasibility; perceived effectiveness of DA; quality of communication; self-efficacy | Including: QOC; DSES; DCS |
Cox, C et al. [34] | 2019 | Intensive care USA | Decision about prolonged mechanical ventilation provision in critical illness | Proxy | Anxiety/depression; clinician–surrogate concordance; decisional conflict; perception of care centeredness; quality of communication; comprehension of relevant information | Including: QOC; DCS |
Hanson, L et al. [35] | 2017 | Nursing homes USA | Treatment decisions for a person with advanced dementia | Proxy | Advance Care Planning problem score; satisfaction with decision; decisional conflict; involvement in decision-making; quality of communication; satisfaction with care | Including: QOC |
Lord, K et al. [30] | 2017 | Memory clinics UK | Dementia family carers deciding about place of care | Proxy | Acceptability of DA; anxiety/depression; decisional conflict | Including: DCS |
Malloy-Weir, LJ et al. [31] | 2017 | Nursing homes Canada | Initiation of antipsychotic medications for a person with dementia | Proxy | Satisfaction with decision; decisional conflict; knowledge | Including: knowledge assessed using an 8–10-item survey based on the Ottawa Knowledge Questionnaire; low-literacy DCS; SWDS |
Mitchell, SL et al. [32] | 2001 | Acute care Canada | Placement of a percutaneous endoscopic gastrostomy tube for older adult > 65 with cognitive impairment | Proxy | Acceptability of DA; decisional conflict; knowledge | Including: knowledge assessed in a multiple-choice format; DCS |