Table 2 Semi-structured interview schedule
1. | Please start by telling me the story of your child’s epilepsy |
2. | Could you tell me how your child’s epilepsy has affected you and your family? |
3. | Thinking back to before your child started ketogenic diet, can you tell me what your expectations or hopes of the diet were? |
4. | Were those expectations delivered? (what has changed with ketogenic diet?) |
5. | Can I ask, how did that make you feel? |
6. | Has that changed - do you still feel that way now? |
7. | As you are aware we are interested in the results or outcomes that parents believe are important to assess in clinics and research, what results do you think are important when using the KD? |
8. | If you were asked to prioritise, what would be the most important result or outcome? |
9. | Can you tell me about the day-to-day management of the KD? |
10. | What might help to make KD easier for families? |
11. | Do you think a buddy or mentoring programme would be helpful where parents support each other with KD? |