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Table 3 TtLIVE components

From: The Transitions to Long-term In Home Ventilator Engagement Study (Transitions to LIVE): study protocol for a pragmatic randomized controlled trial

Intervention feature Details
Scheduled virtual clinic visits I. Virtual clinic visits with VAI, family, and HMV clinical team over the aTouchAway™ platform will be scheduled at the usual frequency of face-to-face or virtual clinic visits in the standard of care group.
II. Structure and content will be based on the structure and content of usual care face-to-face or virtual ventilator clinic visit and include clinical history and symptoms, ventilator data download reports, airway clearance device data downloads, and ventilator alarm review and plan of care.
Virtual care plan and action plan I. Co-developed by and accessible to VAI, family, and nominated circle of care members
II. Summary of medical diagnoses, medications, allergies, ventilator and cough assist settings and alarms, and special precautions
III. Bespoke action plan for clinical and equipment-related issues developed by each clinical team as part of standard clinical care
Scheduled monitoring I. Bimonthly monitoring with the VentSS questionnaire of symptoms/signs, ventilator usage, and/or ventilator-related equipment issues and/or alarms indicative of respiratory infection and/or deterioration/ disease progression
II. Programmed daily and/or weekly reminders to encourage adherence with equipment use and/or maintenance
III. Monthly monitoring with the S3-NIV questionnaire of symptoms/signs, ventilator usage, and/or ventilator-related equipment issues
IV. Remote monitoring of ventilators
Scheduled as needed Consultation over the aTouchAway™ platform I. Triggered by concerning symptoms and/or ventilator parameters (ie yellow or red monitoring alerts)
II. Requested by VAI/family and/or healthcare providers
III. Secure messaging, voice call, virtual or face-to-face visit
Education resource library I. Access to documents and videos customized to their technology type. For example, ventilator cleaning guides, education refreshers on equipment, and methods for troubleshooting ventilator problems.