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Table 2 Outline of SPIN-SELF videoconference group sessions

From: The Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program: protocol for a two-arm parallel partially nested randomized controlled feasibility trial with progression to full-scale trial

Session number Week Session topic
1 1 • Welcome
• Introduction to self-management
• Introduction to SPIN-SELF online modules and toolkit
Assignment: Review the Fatigue Module
2 2 • Introduce the SPIN-SELF Fatigue module
• SMART goal setting (part 1)
• Practicing setting SMART goals related to fatigue
Assignment: Write a goal on fatigue using the online goal form; review the Sleep Module
3 3 • Introduce the SPIN-SELF Sleep module
• SMART goal setting (part 2), discuss progress on fatigue goals
Assignment: Write a goal on sleep using the online goal form; practice either fatigue goal or sleep goal; review the Managing Emotions and Stress Module
4 4 • Discussion on the SPIN-SELF Managing Emotions and Stress Module
• Check-in on the progress of participants’ SMART goals
• Discuss tips on how to overcome common barriers to achieving goals
Assignment: Write a goal on managing emotions and stress; continue working on the goal most relevant to you (fatigue or sleep or emotions and stress); participants to select another SPIN-SELF module relevant to them and review it:
o Digestive system & Nutrition Module
o Itch Module
o Coping with Appearance Changes Module
o Pain Module
o Skin Care Module
o Effective Communication with Health Care Providers Module
5 6 • Discuss individually selected SPIN-SELF modules
• Check-in on the progress of participants’ SMART goals
• Discuss tips on how to stay motivated when working on goals
Assignment: continue working on current goals; review another SPIN-SELF module
6 8 • Discuss progress on previously set SMART goals and new goals
• Recap on setting SMART goals
• Recap on overcoming barriers to achieving goals
• Discussion on mindset and habits to be successful in reaching goals
Assignment: continue working on current goals; review the SPIN-SELF Effective Communication with Health Care Providers Module
7 10 • Discussion on the Effective Communication with Health Care Providers Module
• Discussion on how to prepare for a health care appointment and how to make health care decisions
• Check-in on the progress of participants’ SMART goals
Assignment: continue working on current goals
8 12 • Discussion on overall progress in self-management goals
• Wrap-up of the SPIN-SELF Program and discuss how to continue with the goals after the sessions end