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Table 2 Outline of SPIN-SELF videoconference group sessions

From: The Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program: protocol for a two-arm parallel partially nested randomized controlled feasibility trial with progression to full-scale trial

Session number

Week

Session topic

1

1

• Welcome

• Introduction to self-management

• Introduction to SPIN-SELF online modules and toolkit

• Assignment: Review the Fatigue Module

2

2

• Introduce the SPIN-SELF Fatigue module

• SMART goal setting (part 1)

• Practicing setting SMART goals related to fatigue

• Assignment: Write a goal on fatigue using the online goal form; review the Sleep Module

3

3

• Introduce the SPIN-SELF Sleep module

• SMART goal setting (part 2), discuss progress on fatigue goals

• Assignment: Write a goal on sleep using the online goal form; practice either fatigue goal or sleep goal; review the Managing Emotions and Stress Module

4

4

• Discussion on the SPIN-SELF Managing Emotions and Stress Module

• Check-in on the progress of participants’ SMART goals

• Discuss tips on how to overcome common barriers to achieving goals

• Assignment: Write a goal on managing emotions and stress; continue working on the goal most relevant to you (fatigue or sleep or emotions and stress); participants to select another SPIN-SELF module relevant to them and review it:

o Digestive system & Nutrition Module

o Itch Module

o Coping with Appearance Changes Module

o Pain Module

o Skin Care Module

o Effective Communication with Health Care Providers Module

5

6

• Discuss individually selected SPIN-SELF modules

• Check-in on the progress of participants’ SMART goals

• Discuss tips on how to stay motivated when working on goals

• Assignment: continue working on current goals; review another SPIN-SELF module

6

8

• Discuss progress on previously set SMART goals and new goals

• Recap on setting SMART goals

• Recap on overcoming barriers to achieving goals

• Discussion on mindset and habits to be successful in reaching goals

• Assignment: continue working on current goals; review the SPIN-SELF Effective Communication with Health Care Providers Module

7

10

• Discussion on the Effective Communication with Health Care Providers Module

• Discussion on how to prepare for a health care appointment and how to make health care decisions

• Check-in on the progress of participants’ SMART goals

• Assignment: continue working on current goals

8

12

• Discussion on overall progress in self-management goals

• Wrap-up of the SPIN-SELF Program and discuss how to continue with the goals after the sessions end