Table 1 Patients’ self-reported understanding of key clinical trial and registry terms/concepts
Research phrase | Self-reported percentage understanding (%) | ||||
|---|---|---|---|---|---|
Poor | Fair | Good | Very good | Excellent | |
“Healthcare Registry” (n = 87) | 18.4% | 19.5% | 34.5% | 20.7% | 6.9% |
“Kidney Research Registry” (n = 87) | 14.9% | 19.5% | 37.9% | 23.0% | 4.6% |
“Clinical Trial” (n = 87) | 16.1% | 14.9% | 32.2% | 27.6% | 9.2% |
“Randomisation” (n = 87) | 34.5% | 23% | 23% | 14.9% | 4.6% |
“Informed Consent” (n = 87) | 6.9% | 10.3% | 36.8% | 31.0% | 14.9% |