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Table 1 Summary of primary and secondary care data*

From: Using routinely recorded data in a UK RCT: a comparison to standard prospective data collection methods

Variable

Total participants

Total data in secondary care datasets

Total exclusively in secondary care datasets

Total data in primary care datasets

Total exclusively in primary care datasets

First-ever seizure (all types)

12 (52%)

10 (43%)

6 (26%)

6 (26%)

2 (8%)

Diagnosis of epilepsy (baseline)

18 (78%)

5** (22%)

5 (22%)

13*** (57%)

13 (57%)

Date of first follow-up seizure

7 (30%)

3 (13%)

3 (13%)

4 (17%)

4 (17%)

Date of AED first prescription

23 (100%)

0****

0

23 (100%)

23 (100%)

  1. *For 23 participants in whom data from both primary and secondary care sources were available
  2. **Diagnosis made by record of two seizure episodes
  3. ***Diagnosis made by record of a code consistent with ‘diagnosis of epilepsy’
  4. ****Prescribing data only available in primary care datasets