Concept | Variables and measures | Time points | Estimated burden |
---|---|---|---|
Sample characteristics | Age, sex/gender, race/ethnicity, marital status, education, relationship of FCG to care recipient, how long the FCG has been providing care to the recipient, any computer/smartphone experience and availability, diagnoses, medications | Baseline | 2–6 min |
Properties of the transition | Mutuality, single items for relationship of FCG/care recipient; caregiving demand | Baseline | 2–6 min |
Transition conditions (facilitators or barriers) | Spiritual/religious beliefs, time available for caregiving (FCG responsibilities and demands), decision-making preference, health literacy, income (single items), FCG support needs, hospital discharge readiness, FCG personal health problems | Baseline | 5–12 min |
Patterns of response (outcomes) | |||
 Aim 1 (primary) | Preparedness for caregiving [36], communication skills, CAPACITY measure, satisfaction with care (PACIC) | Baseline, 2 weeks, and 8 weeks | 6–10 min |
 Aim 2 (secondary) | CQOLC scale, coping, depression, burden (Bakas Caregiving Outcomes Scale), Palliative Care Outcomes Scale-Carer | Baseline, 2 weeks, and 8 weeks | 17–20 min |
 Aim 3 (secondary) | Health care utilization and cost (Ambulatory and Home Care Record) | Monthly, 6 months | 30 min |