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Table 3 Framework concepts, variables, timing, and estimated burden

From: A technology-enhanced model of care for transitional palliative care versus attention control for adult family caregivers in rural or medically underserved areas: study protocol for a randomized controlled trial

Concept

Variables and measures

Time points

Estimated burden

Sample characteristics

Age, sex/gender, race/ethnicity, marital status, education, relationship of FCG to care recipient, how long the FCG has been providing care to the recipient, any computer/smartphone experience and availability, diagnoses, medications

Baseline

2–6 min

Properties of the transition

Mutuality, single items for relationship of FCG/care recipient; caregiving demand

Baseline

2–6 min

Transition conditions (facilitators or barriers)

Spiritual/religious beliefs, time available for caregiving (FCG responsibilities and demands), decision-making preference, health literacy, income (single items), FCG support needs, hospital discharge readiness, FCG personal health problems

Baseline

5–12 min

Patterns of response (outcomes)

 Aim 1 (primary)

Preparedness for caregiving [36], communication skills, CAPACITY measure, satisfaction with care (PACIC)

Baseline, 2 weeks, and 8 weeks

6–10 min

 Aim 2 (secondary)

CQOLC scale, coping, depression, burden (Bakas Caregiving Outcomes Scale), Palliative Care Outcomes Scale-Carer

Baseline, 2 weeks, and 8 weeks

17–20 min

 Aim 3 (secondary)

Health care utilization and cost (Ambulatory and Home Care Record)

Monthly, 6 months

30 min

  1. Abbreviations: CAPACITY Caregiver Perceptions About Communication With Clinical Team Members, CQOLC Caregiver Quality of Life-Cancer scale, FCG family caregiver, PACIC Patient Assessment of Chronic Illness Care