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Table 1 Components of the LIVE intervention in the LIVE@Home.Path trial

From: LIVE@Home.Path—innovating the clinical pathway for home-dwelling people with dementia and their caregivers: study protocol for a mixed-method, stepped-wedge, randomized controlled trial

 

Learning

Innovation

Volunteer

Empowerment

Content

Local learning programs covering key aspects of the dementia syndrome, coping in daily life, legal, safety and economic issues

Tailored use of welfare technology such as technical aids, cognitive intervention devices and assisted living systems/smart house systems

Service innovation

Data collection

PWDs often experience social deprivation, and volunteer support is a politically highly prioritized area in Norway

Support of relatives

End-of-life care and advance care planning: a repeating process of communication to investigate values and wishes for domestic and institutionalized treatment and care (i.e. “What matters to you?”)

Systematic medication review by the PWD’s general practitioner

Participants

PWD

Caregivers

Coordinators

Volunteers

Teachers in the municipal and specialized health-care services

PWD

Caregivers

Coordinators

PWD

Caregivers

Coordinators

Volunteers from nonprofit organizations (The Red Cross, Norwegian Association for Public Health)

Volunteer managers

PWD

Caregivers

Coordinators

General practitioner

Actions

Coordinator:

 • Inform about potential lessons/courses for both PWD and caregiver

 • Search for practical solutions to ensure participation

Coordinator:

 • Assess and evaluate usefulness of devices already in use

 • Inform about additional available welfare technology in the municipality

 • Inform about specific communication platforms (Jodacare©, Friskus©), social media forums (Facebook©) and applications for tablets (Alight©)

Coordinator:

 • Inform about volunteer services

Volunteer manager:

 • Match PWD with volunteer after assessment of preferences and wishes

Coordinator:

 • Initiate systematic medication review with general practitioner

 • Initiate advanced care planning with general practitioner, including issues on formal next of kin, guardianship

 • Facilitate application process for home-based services

  1. PWD person with dementia