Table 1 Completion of initial survey
Demographic questions | Number | Completed (%) |
|---|---|---|
Consent to participate (yes) | 456 | 100% |
Age (range) | 452 | 99% |
Respondent’s role in trials | 450 | 99% |
Where respondent lives | 452 | 99% |
Specific open-ended feedback questions | ||
 Based on your experience, what questions or comments do you have (if any) about why people stay involved in a trial? | 454 | 99% |
 Based on your experience, what questions or comments do you have (if any) about the planning of study data collection? | 415 | 91% |
 Based on your experience, what questions or comments do you have (if any) about how trials collect follow-up data from participants? | 397 | 87% |
 Based on your experience, what questions or comments do you have (if any) about the information people are given about follow-up data collection procedures for a trial? | 376 | 82% |
 Based on your experience, what questions or comments do you have (if any) about trial staff who are involved in collecting follow-up data from trial participants? | 343 | 75% |
 Do you have any other questions or comments about how people are encouraged to stay involved in trials? | 261 | 57% |