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Table 3 Results for Q-PUR and indication of six and three selected questions

From: Patients’ and physicians’ disagreement on patients’ understanding of clinical cancer trial information: a pairwise pilot study of mirroring subjective assessments compared with objective measurements

 

Q-PUR question

Percentage of correct answers

6 questions

3 questions

1.

The main reason for carrying out research with patients is…

93.5

 

x

2.

Research with patients is carried out…

91.3

x

 

3.

In a randomized clinical research trial/study…*

95.7

x

 

4.

The main aim of a randomized trial is to…

97.8

 

x

5.

When a trial is randomized…

87.0

x

 

6.

It is justified for doctors to carry out a randomized trial…

65.2

 

x

7.

If ‘best supportive care’ or ‘symptom control’ is one of the randomization options in the trial, it means that…**

65.2

  

8.

Patients are chosen for a trial…

82.6

x

 

9.

Taking part in the trial…

95.7

x

 

10.

You can leave a trial…

95.7

  

11.

If you do not want to take part in a trial…

87.0

x

 

12.

Doctors involved in clinical research trials/studies…

65.2

  
  1. * In the Swedish translation the following statement was inserted after the word randomized: ‘(the patients are assigned by lot to one group or the other)’
  2. ** In the Swedish translation the words ‘best supportive care’ in English were kept in parentheses after the Swedish translation, and the words ‘symptom control’ were omitted