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Table 1 Overview of study assessments

From: CARer-ADministration of as-needed subcutaneous medication for breakthrough symptoms in homebased dying patients (CARiAD): study protocol for a UK-based open randomised pilot trial

Assessments

Screening

Baseline

Last days of patient’s life

After patient’s death

Eligibility

X

X

X

 

Informed consent

 

X

X

 

Demographic information

 

X

  

Medical history

 

X

  

Concomitant medications

 

X

  

Symptom control

Symptom scores

  

X

 

Overall symptom burden

   

X

Time to symptom relief

  

X

X

Safety

Risk assessment

X

   

Competency Checklist

 

X

X

 

Significant Event reporting

  

X

 

Evaluation of training package

   

X

Impact on carer

Self-efficacy

 

X

X

X

Confidence

  

X

 

Acceptability

   

X

Health Economic outcomes

Impact on carers

 

X

 

X

Discrete Choice Experiment attribute selection

   

X