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Table 5 Sources of data for addressing research objectives

From: Improving delivery of secondary prophylaxis for rheumatic heart disease in remote Indigenous communities: study protocol for a stepped-wedge randomised trial

Research objective Data collection tools Frequency
1. To test whether a model of care designed to optimise health systems improves adherence to secondary prophylaxis for RHD • RHD Register data
• Spreadsheet of time on intervention for each community
• Continuous
2. To assess the extent to which health clinics change their delivery of RHD care to align with the systems-based model and the barriers and enablers of organisational change • Systems Assessment Tool (SAT), a component of the One21seventy tool RHD Continuous Quality Improvement package
• Project Officer Reports – structured reports from project staff detailing implementation
• Baseline and post intensive phases
• Completed at every site visit
• Semi-structured interviews with clients/carers of clients, clinic managers, RHD coordinators, RHD programme staff, other relevant staff (chronic disease coordinators, NT Health Development public health nurses), using an interview guide for each group of participants • Mostly baseline and post intensive phases
• Project Officer Reports • Completed at every site visit
• Document review (e.g. meeting minutes, feedback reports from CQI audits) • As arise
3. To explore the degree to which adopting the systems-based model improves processes of RHD care and adherence to secondary prophylaxis and which elements of the model are most effective in activating change • RHD SAT and RHD Register • Baseline and post intensive phases
• Semi-structured interviews as described above • Clients/carers: baseline and post intensive phases • Clinic staff and Control Programme staff: baseline and post intensive phases • Other relevant stakeholders: baseline and post intensive phases
• Project Officer Reports • Completed at every site visit
4. To explore environmental, organisational and team factors associated with success in achieving organisational and patient-level improvements in secondary prophylaxis for RHD • RHD SAT and RHD Register • Baseline and post intensive phases
• Semi-structured interviews as described above • Mostly baseline and post intensive phases
• Project Officer Report • Completed at every site visit
• Document review (e.g. meeting minutes, feedback reports from CQI audits) • As arise
5. To assess the impact of the systems-based model on other services for RHD clients • RHD CQI audit of ARF/RHD clinical measures, a component of the One21seventy tool RHD Continuous Quality Improvement package • Baseline and post intensive phases
6. To assess the impact of the systems-based model on other routine services delivered in the clinics • NT Aboriginal health key performance indicators data • Baseline and post intensive phases
7. To assess the impact of the intervention on clients’ experience of health care in relation to their ARF/RHD • Interview guide for RHD clients • Baseline and post intensive phases
  1. ARF acute rheumatic fever, CQI continuous quality improvement NT Northern territories, RHD rheumatic heart disease