Table 1 Participation in involvement structures in SAFER 2
Type of meeting | Number of meetings held | Number (%) of meetings with service users present | Comments |
|---|---|---|---|
Level 1: Strategic involvement | |||
Trial Management Group (TMG) | 10 | 8 (80%) | Two service users were invited to each meeting |
Trial Steering Committee (TSC) | 4 (1 per annum) | 3 (80%) | Initially, one invitee per meeting. Increased to two after second meeting with no service user present |
Data Monitoring and Ethics Committee (DMEC) | 6 (1 per annum) | 6 (100%) | Also increased to two per meeting to keep consistent with TSC |
Task and Finish (T&F) Group | 5 | 3 (60%) | Two T&F Groups considered very technical and not appropriate for service user involvement |
Writing Day | 3 | 2 (66%) | Service user members of TMG were invited to the writing days |
Level 2: Site level - Site Management Teams | |||
Wales | 18 | 4 (22%) | One service user attended meetings in later stages of the study |
East Midlands | 8 | 0 | No service users recruited |
London | 9 | 3 (33%) | Initial and later service user attendance |
Level 3: Local level - Service User Reference Groups (SURGs) | |||
Wales SURG | 1 | 1 | Eight members met once. Recruited from panel co-ordinated by Age Concern for SAFER 1 study |
East Midlands SURG | 1 | 1 | Four members met once. Recruited through Sheffield Emergency Care Forum – service user group linked to Sheffield University |
London SURG | 7 | 7 | Six members met 7 times in years 3, 4, 5. Recruited through Falls Prevention Service, Housing Association, mobile library service for housebound people |