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Table 2 Verbatim names of PROM scales and single items

From: Developing core outcomes sets: methods for identifying and including patient-reported outcomes (PROs)

1 Activities of daily living 33 Extended familyrelationships 65 Professional care providers
2 Activity level 34 Fatigue 66 Psychological symptoms
3 Anger-hostility 35 Fatigue-inertia 67 Psychological distress
4 Anxiety 36 Financial difficulties 68 Psychological impact
5 Appetite loss 37 Financial impact 69 Psychological issues
6 Bodily pain 38 Fullness following meals 70 Reflux
7 Body image 39 Functional wellbeing 71 Role emotional
8 Choking 40 General health 72 Role function
9 Cognitive function 41 Global evaluations 73 Role physical
10 Confusion-bewilderment 42 Global QOL 74 Sexual relationships
11 Constipation 43 Global satisfaction 75 Sleep disturbances
12 Cough 44 Global life satisfaction 76 Social activities
13 Deglutition 45 Hair loss 77 Social environment
14 Deglutition disturbances 46 Health perceptions 78 Social function
15 Depression 47 Healthcare orientation 79 Social issues
16 Depression-dejection 48 Heartburn 80 Social/family wellbeing
17 Diarrhoea 49 Indigestion 81 Speech
18 Diarrhoea/constipation 50 Information needs 82 Spiritual issues
19 Difficulty in swallowing 51 Insomnia 83 Stool formation
20 Domestic environment 52 Loss of independence 84 Swallowing problems
21 Dry mouth 53 Loss of weight 85 Symptoms
22 Dumping 54 Medical treatment 86 Symptoms of GERD
23 Dysphagia 55 Mental health 87 Taste
24 Dyspnoea 56 Nausea & vomiting 88 Tension-anxiety
25 Eating 57 Odynophagia 89 Trouble swallowing saliva
26 Eating restrictions 58 Pain 90 Vigour-activity
27 Eating with others 59 Physical symptoms 91 Vitality
28 Emotion 60 Physical activity 92 Vocational environment
29 Emotional function 61 Physical distress 93 Weight
30 Emotional problems (anxiety) 62 Physical function 94 Worry/fear of recurrence
31 Emotional wellbeing 63 Physical problems  
31 Esophageal cancer scale 64 Physical wellbeing  
  1. GERD: Gastroesophageal reflux disease; QOL: Quality of life.