Skip to main content


We're creating a new version of this page. See preview

  • Oral presentation
  • Open Access

Service user groups as co-applicants on a platform study for a trial

  • 1,
  • 2, 1,
  • 3,
  • 3,
  • 3,
  • 1 and
  • 1
Trials201314 (Suppl 1) :O35

  • Published:


  • Smoking Cessation
  • Choice Experiment
  • Discrete Choice
  • Discrete Choice Experiment
  • Interview Schedule


It is recognised that patient and public involvement (PPI) in research should begin at the earliest stage possible. Whilst this ideal is widely acknowledged, in practice, it is not easily achievable. Constraints of time, funding, ethics and availability of appropriate representatives often mean that PPI is not included until research is fairly well advanced. This jeopardises one object of PPI; to ensure that research is being carried out ‘with' or ‘by' members of the public rather than ‘to', ‘about' or ‘for' them, because it marginalises members of the public during the crucial project scoping and design phases.


In a platform study to inform the design of trials delivering incentives for smoking cessation in pregnancy and breastfeeding, two service user groups, with similar characteristics to the intended target population, were co-applicants on the grant and worked closely with researchers based in Scotland and England throughout.


The mother and baby groups contributed to interpreting systematic review findings, informed the text for participant materials, piloted study vignettes that were used within interview schedules, piloted the discrete choice experiment and voted on a shortlist of promising incentives.


Extensive involvement of the groups as team members across a diverse range of research activities, from the study onset to dissemination, resulted in unique contributions to trial development. Regularly taking the research to the groups enabled harder to reach, less "professionalised" PPI involvement and the benefits of both group continuity and new members contributing.

Authors’ Affiliations

University of Aberdeen, Aberdeen, UK
University of Stirling, Stirling, UK
University of Central Lancashire, Lancashire, UK


© Morgan et al; licensee BioMed Central Ltd. 2013

This article is published under license to BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.


By submitting a comment you agree to abide by our Terms and Community Guidelines. If you find something abusive or that does not comply with our terms or guidelines please flag it as inappropriate. Please note that comments may be removed without notice if they are flagged by another user or do not comply with our community guidelines.