Table 9 Intersecting barriers: physical health and study-design logistics
Theme | Sub-theme | Description | Data displays |
|---|---|---|---|
Weekly hospital appointments | Physical health | Poor health/stamina and inhibited capacity to walk or travel to attend hospital appointments | [I]f it had been a year and a half to two years ago, I would have made sure I got in to do it. I’d have been happy to do the trial… But the state I’m in now, I’m just not able. (P27F, declined) |
My exercise tolerance is abysmal; I walk 10 metres and I’m stuffed… I would be willing to be involved in a trial, if it only consisted of taking a dose of medication once a day … and reporting by phone…to… climb up that bloody hill…[from the train station to the hospital] is becoming more and more - I mean, my wife said, the last time, ‘it looks like I’m going to have to get you a wheelchair’ (P44M, declined) | |||
Transport | Lack of consistent transportation | It was with coming out and in all the time. I’ve got a good half hour’s journey and I don’t always have someone to bring me in. So, it’s a bit of a problem getting transport in. That’s the only reason [for my not participating in the trial]. (P27F, declined) | |
Time | Time commitment associated with weekly hospital appointments seen as too burdensome by participants with work and competing specialist appointments | When Dr [de-identified] said, I’ll have to come in here every week, ‘I’m going oh, I have enough trouble coming in here once a month…’ I do casual work every week and that’s just too much…. If I had to come in every week for the marijuana, no, it would be all too much. (P28M, declined) | |
I chose not to go onto the study, there’s enough on my plate to be quite honest without getting involved…. with another commitment… (P40M, declined) | |||
Distance | Time and financial costs deemed too onerous by those living far from the hospital | I heard about it and I was all for it. It just really - we couldn’t fit it in to our time slots. We’re from the country, it takes us three and a half hours to get down here. It would have cost us out of pocket a fair bit of money for accommodation, travel, et cetera. (P37M, declined) |