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Table 3 Survey domains

From: HIAYA CHAT study protocol: a randomized controlled trial of a health insurance education intervention for newly diagnosed adolescent and young adult cancer patients

Items shown in bold are primary or secondary outcomes

Source

BL

FU

Session

Demographics

Age, date of diagnosis, gender, sexual orientation, race/ethnicity

 

X

  

Demographics repeated

Treatment status, partnership/marital status, education level, zip code, current living situation

 

X

X

 

Enabling characteristics

Familiarity with ACA policies

CCSS insurance survey

X

X

Session 3

Health insurance literacy

1. Understanding of terms (e.g., premium, deductible, co-payments, co-insurance, out-of-pocket maximum, annual limits)

2. Confidence in using insurance plans

Commonwealth Fund Annual Insurance Survey

Health Insurance Literacy Measure

X

X

Session 1

Cost-related literacy: comfort/confidence talking about medical costs with providers, understanding of financial concepts of care

CCSS insurance survey

X

X

Session 4

Household and personal income, employment status

 

X

X

All sessions

Cancer diagnosis, age at and years since diagnosis, treatment

 

X

X

Session 1

Need

Health status

 

X

 

Session 1

Insurance status, type, duration

CCSS insurance survey

X

X

All sessions

Insurance coverage

Denial or difficulty obtaining coverage because of health history (within past 2 years)

CCSS insurance survey

X

X

Session 3

Not taking a new job in order to keep health insurance in past year

X

X

Session 3

Trouble finding a provider who accepts insurance/getting an appointment as needed

X

X

Session 3

Underinsurance and costs

Unmet health care need due to cost; provider visits past year; out of pocket medical costs > 10% of income

CCSS insurance survey

X

X

Session 4

Worry/problems about medical costs (e.g., problems paying bills)

COmprehensive Score for financial Toxicity

X

X

Session 4

Financial distress/toxicity

 

X

X

Session 4

Policy holder (e.g., self, spouse, parent) and source

X

X

Session 1

Plan source: employer-sponsored, direct purchase (exchange or outside), Medicaid, Medicare

CCSS insurance survey

X

X

Session 2

Coverage-related variables

Type of plan: high-deductible plan; narrow network plan

CCSS insurance survey

X

X

Session 2

Being forced to switch plans because of cancelation (in past year)

X

X

Session 2, 3

Rating of current plan

X

X

Sessions 2 and 3

Satisfaction with navigation

Patient Satisfaction with Interpersonal Relationship with Navigator

 

X

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