Items shown in bold are primary or secondary outcomes | Source | BL | FU | Session | |
---|---|---|---|---|---|
Demographics | Age, date of diagnosis, gender, sexual orientation, race/ethnicity | Â | X | Â | Â |
Demographics repeated | Treatment status, partnership/marital status, education level, zip code, current living situation | Â | X | X | Â |
Enabling characteristics | Familiarity with ACA policies | CCSS insurance survey | X | X | Session 3 |
Health insurance literacy 1. Understanding of terms (e.g., premium, deductible, co-payments, co-insurance, out-of-pocket maximum, annual limits) 2. Confidence in using insurance plans | Commonwealth Fund Annual Insurance Survey Health Insurance Literacy Measure | X | X | Session 1 | |
Cost-related literacy: comfort/confidence talking about medical costs with providers, understanding of financial concepts of care | CCSS insurance survey | X | X | Session 4 | |
Household and personal income, employment status | Â | X | X | All sessions | |
Cancer diagnosis, age at and years since diagnosis, treatment | Â | X | X | Session 1 | |
Need | Health status | Â | X | Â | Session 1 |
Insurance status, type, duration | CCSS insurance survey | X | X | All sessions | |
Insurance coverage | Denial or difficulty obtaining coverage because of health history (within past 2 years) | CCSS insurance survey | X | X | Session 3 |
Not taking a new job in order to keep health insurance in past year | X | X | Session 3 | ||
Trouble finding a provider who accepts insurance/getting an appointment as needed | X | X | Session 3 | ||
Underinsurance and costs | Unmet health care need due to cost; provider visits past year; out of pocket medical costs > 10% of income | CCSS insurance survey | X | X | Session 4 |
Worry/problems about medical costs (e.g., problems paying bills) | COmprehensive Score for financial Toxicity | X | X | Session 4 | |
Financial distress/toxicity | Â | X | X | Session 4 | |
Policy holder (e.g., self, spouse, parent) and source | X | X | Session 1 | ||
Plan source: employer-sponsored, direct purchase (exchange or outside), Medicaid, Medicare | CCSS insurance survey | X | X | Session 2 | |
Coverage-related variables | Type of plan: high-deductible plan; narrow network plan | CCSS insurance survey | X | X | Session 2 |
Being forced to switch plans because of cancelation (in past year) | X | X | Session 2, 3 | ||
Rating of current plan | X | X | Sessions 2 and 3 | ||
Satisfaction with navigation | Patient Satisfaction with Interpersonal Relationship with Navigator | Â | X | Â |