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Table 3 Patient- and family member-related data

From: A multicomponent family support intervention in intensive care units: study protocol for a multicenter cluster-randomized trial (FICUS Trial)

Time point of assessment Patient Family member
T0 T1 T2 T3 T4 T0 T1 T2 T3 T4
Demographics
 Age, gender, civil status (T2–T4 change), Education X      X   X X X
 Type of family member (T0), primary carer (yes/no)       X   X X X
 Co-habiting with patient (yes/no), frequency of contact       X     
 Travel time to hospital       X     
Health status
 Medical diagnosis (MDSi) X X         
 Trauma (yes/no); if yes, AISa X          
 Mechanical ventilation and circulary support (T0: yes/no, T1: # of days) X X         
 SAPS-2b X          
 NEMSc, SOFAd X X         
 Death (yes/no); if yes, date, cause, placee X X X X X      
 Organ donation (yes/no); if yes, organ, surrogate dm) X          
 Functional status (Katz ADL/Lawton IADL)e    X X X      
 Prior/present psychiatric diagnosis (yes/no)       X     
 Self-perceived health (VAS)        X X X X X
Care utilization
 Cause of admission X          
 Type of admission (expected, unexpected), admitted from X          
 Surgery (emergency, planned, none) X          
 Previous ICU stays (yes/no) X          
 Prior need for informal/ formal care (yes/no)f X          
 Length of ICU stay   X         
 Discharge/transfer destination, planned vs. unexpected   X         
 Need for informal/formal care (yes / no); if yes, change, hours/frequency, more/less than before ICU treatment)e    X X X      
 Prior/current/new psychological/psychiatric treatment (yes / no)       X X X X X
 Use of prescription drugs       X X X X X
 Current treatment for a chronic condition (yes/no)       X     
 Number of family physician visits/hospitalizations (if yes: related to critical illness yes/no/length of stay)        X X X X
 Previous ICU experience (as patient, as family of the patient)       X     
 Family satisfaction with prior care experience (VAS)       X     
 Family satisfaction with care on hospital wards (VAS)         X   
Work situation
 Level of employment, income       X     
 Change in level of employment (yes / no); if yes: related to critical illness yes/no), new income        X X X X
 Sick leave/absence from work (if yes: # of (half-)days)       X X X X X
 Presenteeism        X X X X
  1. aAbbreviated Injury Scale
  2. bSequential Organ Failure Assessment Score
  3. cNine equivalents of nursing manpower use score
  4. dSimplified Acute Physiology Score
  5. ePatient-related information at T2, T3, T4 obtained from family member
  6. fPatient-related information at T0 obtained from family member