Domain/construct | Measurea | Range | Cronbach’s αb | T0 | T1 | T2 | T3 | T4 |
---|---|---|---|---|---|---|---|---|
Quality of family care | ||||||||
Satisfaction with care (primary outcome) | Family satisfaction with ICU care (FS-ICU-24R) | 0–100 | > .85 | X | ||||
Quality of communication | Questionnaire on Quality of Physician-Patient Interaction (QQPPI-14) | 1–5 | .95 | X | ||||
Support from nurses | Family Perceived Support Questionnaire (ICE-FPSQ-14) | 14–70 | > 0.87 | X | ||||
Family management | ||||||||
Family functioning | Family Assessment Device - General Functioning Scale (FAD-GF-12) | 1–4 | .87 | X | X | X | X | X |
Family resilience | Brief Resilience Scale (BRS-6)c | 1–5 | .85 | X | X | X | X | X |
Mental health | ||||||||
Subjective well-being | Satisfaction with Life Scale (SWLS-5) | 5–35 | .89–.92 | X | X | X | X | X |
WHO-5 Well-Being Index (WHO-5) | 0–100 | .92 | X | X | X | X | X | |
Adapted VAS on Quality of Life (QoL-VAS) | 0–100 | n/a | X | X | X | X | X | |
Psychological distress | Distress Thermometer (DT) | 0–10 | n/a | X | X | X | X | X |
Impact of Events Scale-6 (IES-6) | 0–4 | .80 | X | X | X | X | X | |
Hospital Anxiety and Depression Scale (HADS-14) | 0–21 | > .80 | X | X | X | X | X |