Table 3 Summary of follow-up data collection
| Â | Data items | Source |
|---|---|---|
Routine laboratory data | Creatinine, urea, Kt/V, urea reduction ratio, albumin, haemoglobin, haematocrit, mean corpuscular volume, sodium, potassium, bicarbonate, corrected calcium, phosphate, C-reactive protein, intact parathyroid hormone, total cholesterol | UKRR |
Cardiovascular and infection hospital admission data | Cardiovascular: nonspecific chest pain (102); congestive heart failure, non-hypertensive (108); coronary atherosclerosis (101); other circulatory diseases (117); acute myocardial infarction (100); peripheral and visceral atherosclerosis (114); chronic ulcer of skin (199); Gangrene (248); aortic, peripheral and visceral arterial disease (115); transient cerebral ischemia (112); cardiac arrest and ventricular fibrillation (107); pulmonary heart disease (103); other and ill-defined cerebrovascular disease (111); acute cerebrovascular disease (109) Infection: pneumonia (122); septicemia (except in labour) (2); pleurisy, pneumothorax, pulmonary collapse (130); aortic and peripheral arterial emboli (116); tuberculosis (1); mycoses (4); HIV infection (5); encephalitis (77); meningitis (76); shock (249); skin and subcutaneous tissue infection (197); fever of unknown origin (246); infective arthritis and osteomyelitis (201); bacterial infection, unspecified site (3); other inflammatory conditions of the skin (198); other infections, including parasitic (8); influenza (123); urinary tract infections (159); genitourinary symptoms and ill-defined conditions (163) | Hospital Statistics (HES, PEDW, ISD), |
Mortality data | Non-cancer mortality (i.e. all causes of death excluding chapter II causes in ICD-10) | NHS Spine tracing, UKRR, Hospital Statistics, Civil Registration |
Patient-reported outcomes | EQ-5D-5L, DSI and time to recovery (following dialysis) [31] | Patient questionnaire administered 6 monthly |
RRT use | Frequency, machine, dialyser, dialysis times and consumables used | Annual census (extracted from the renal IT system) |
Other hospital admissions | Day case and inpatient hospital admissions (including surgical procedures performed) | Hospital Statistics (HES, PEDW, ISD) |
Patient-reported healthcare use | Nursing home/residential home days/hospice days, and primary care, community services and medication usage in the last 6 months | Patient questionnaire administered 6 monthly |
Blood stream infections | Methicillin-resistant Staphylococcus aureus, methicillin-sensitive Staphylococcus aureus, Clostridium difficile, and Escherichia coli, as the report by mandate to PHE/the UKHSA | Reported to PHE/UKHSA and shared with UKRR |