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Table 1 Outcome measures, respondents, and time points

From: Rehabilitation for children with chronic acquired brain injury in the Child in Context Intervention (CICI) study: study protocol for a randomized controlled trial

Outcome measure topic Name of measure Respondents Time points
Brain injury symptoms Health and Behavior Inventory (HBI) [54] Parents, children from 7 years T1, T2, T3
Parenting self-efficacy Tool to measure Parenting Self-Efficacy (TOPSE)1 [57] Parents T1, T2, T3
Executive functioning at home and in school Behavior Rating Inventory of Executive Function 2 (BRIEF-2) [52] Parents, teachers, children from 11 years T1, T2, T3
Children’s quality of life The Pediatric Quality of Life Inventory (PedsQL)1 [53] Parents, all children T1, T2, T3
Unmet healthcare needs of the family Family Needs Questionnaire (FNQ-P) [59] Parents T1, T2, T3
Parents’ symptoms of depression A brief depression severity measure (PHQ-9) [55] Parents T1, T2, T3
Parents’ symptoms of generalized anxiety A brief measure for assessing generalized anxiety disorder (GAD-7) [56] Parents T1, T2, T3
Main ABI-related problems in daily life Likert scale 1–4 Parents, all children T1, T2, T3
Participants’ evaluation of the intervention CICI Evaluation (custom made for the CICI study) Parents, all children, teachers, therapists T2
Goal attainment scaling The goal stairs 1–5 (custom made for the CICI study) Families with therapists T2
  1. 1Different versions are applied for different age groups