Table 1 Outcome measures, respondents, and time points
Outcome measure topic | Name of measure | Respondents | Time points |
|---|---|---|---|
Brain injury symptoms | Health and Behavior Inventory (HBI) [54] | Parents, children from 7 years | T1, T2, T3 |
Parenting self-efficacy | Tool to measure Parenting Self-Efficacy (TOPSE)1 [57] | Parents | T1, T2, T3 |
Executive functioning at home and in school | Behavior Rating Inventory of Executive Function 2 (BRIEF-2) [52] | Parents, teachers, children from 11 years | T1, T2, T3 |
Children’s quality of life | The Pediatric Quality of Life Inventory (PedsQL)1 [53] | Parents, all children | T1, T2, T3 |
Unmet healthcare needs of the family | Family Needs Questionnaire (FNQ-P) [59] | Parents | T1, T2, T3 |
Parents’ symptoms of depression | A brief depression severity measure (PHQ-9) [55] | Parents | T1, T2, T3 |
Parents’ symptoms of generalized anxiety | A brief measure for assessing generalized anxiety disorder (GAD-7) [56] | Parents | T1, T2, T3 |
Main ABI-related problems in daily life | Likert scale 1–4 | Parents, all children | T1, T2, T3 |
Participants’ evaluation of the intervention | CICI Evaluation (custom made for the CICI study) | Parents, all children, teachers, therapists | T2 |
Goal attainment scaling | The goal stairs 1–5 (custom made for the CICI study) | Families with therapists | T2 |