Approach used | Details |
---|---|
Quantitative studies | Â |
Use / adaptation of established/validated tools | Almeida, 2007 [21] - Questionnaire based on the ones used by Bigorra and Baños and Van Gelderen et al. [44, 45] - Use of NEO Personality Inventory (NEOPI-R), validated for the Portuguese population Pflugeisen, 2016 [37] - Review of available surveys (third-party vendor, internal departments, free online surveys) |
Literature review, informed by previous studies | Au, 2015 [22] - Literature review of previous surveys - Satisfaction rating scales guided by evidence-base Pflugeisen, 2016 [37] - No further details provided |
Informed by expert opinions, focus group discussions, etc. | Kost, 2014 [30] - Survey themes based on FGDs with research participants and research professionals Mello, 2018 [36] - Questionnaire based on FGDs, consultation with experts and community advisory boards Pflugeisen, 2016 [37] - Brainstorming sessions with leadership team and research oversight committee of research institute Yessis, 2012 [41] - Questionnaire based on FGDs with research participants and professionals |
Iterative development by researcher | DasMahapatra, 2017 [24] - No further details provided |
No information provided | Dayer, 2017 [25] Henzlova, 1994 [27] Johnson, 2008 [28] Mathieu, 2012 [34] Pope, 2003 [38] |
Qualitative studies | Â |
Use / adaptation of established/validated tools | Cox, 2000 [23] - Semi-structured interview supplemented with previously validated quality of life (QOL) questionnaires (EORTC QLQ C-30 and Hospital Anxiety and Depression Scale) Kost, 2011 [29] - Modified the general hospital survey around patients’ perceptions of hospital care established by National Research Corporation (NRC) Picker to assess perceptions of research participants |
Literature review, informed by previous studies | Harrop, 2016 [26] - Topic guide informed by findings of a previous sub-study Wootten et al., 2011 [40] - No further details provided |
Informed by expert opinions, focus group discussions, etc. | Harrop, 2016 [26] - Topic guide informed by clinical experience of PI Zaharoff, 2018 [43] - FDGs facilitated by support and advocacy organisations Yoder, 1997 [42] - Interview guides based on themes informed by patients, reviewed by clinical experts (physicians, clinical oncology nurses) |
Iterative development by researcher | – |
No information provided | Kvale, 2010 [31] Lawton, 2003 [32] Locock, 2011 [33] Tutton, 2018 [39] |
Mixed-method study | Â |
No information provided | Mattson, 1985 [35] |