Study | Geographical location(s) | Number of trials or facilities in the study | Items | Number of participants (response rate) | Study design | Tool |
---|---|---|---|---|---|---|
Almeida et al. (2007) [21] | Portugal | Multiple studies, 1 facility | 14 | 136 (100%) | Quantitative | Questionnaire |
Au et al. (2015) [22] | Australia | 14 trials, 1 facility | 37 | 80 (96%) | Quantitative | Survey |
Cox (2000) [23] | UK | Multiple trials | Not reported | 55 (NA) | Qualitative | Interviews |
DasMahapatra et al. (2017) [24] | International | PatientsLikeMe platform | 12 | 1621 (24%) | Quantitative | Survey |
Dayer et al. (2017) [25] | Switzerland | 1 trial, 1 facility | 24 | 103 (90%) | Quantitative | Survey |
Harrop et al. (2016) [26] | UK | 1 trial, multicentre | NA | 10 (NA) | Qualitative | Interviews |
Henzlova et al. (1994) [27] | USA & Canada | 1 trial, 83 hospitals | 10 | 3522 (74%) | Quantitative | Questionnaire |
Johnson et al. (2008) [28] | UK | 1 trial, 89 facilities | Not reported | 1431 (37%) | Quantitative | Questionnaire |
Kost et al. (2011) [29] | USA | Multiple trials, 10 centres | NA | 96 (NA) | Qualitative | FGDs |
Kost et al. (2014) [30] | USA | Multiple research projects; 15 centres | 77 | 4961/18890 (26%) | Quantitative | Survey |
Kvale et al. (2010) [31] | USA | 1 trial, 1 facility | Not reported | 4 (NA) | Qualitative | Interview |
Lawton et al. (2003) [32] | USA | 1 trial, 23 facilities | Â | 10 (NA) | Qualitative | Interview |
Locock & Smith (2011) [33] | UK | Multiple trials | NA | 42 (NA) | Qualitative | Interview |
Mathieu et al. (2012) [34] | International | 1 trial, multifacility | 15 for long and 5 for short version | 416 (33.4%) | Quantitative | Survey |
Mattson et al. (1985) [35] | USA | 2 multicentre trials, | Not reported | 1202 (80%) for questionnaire 380 (95%) for interview | Mixed-methods | Interviews & questionnaires |
Mello et al. (2018) [36] | USA | Multiple trials, 3 facilities | 30 | 771 (79%) | Quantitative | Survey |
Pflugeisen et al. (2016) [37] | USA | Multiple trials, 1 institute | 45 | 90 (41%) | Quantitative | Survey |
Pope et al. (2003) [38] | Canada | 14 trials, 1 facility | 39 | 190 (75%) | Quantitative | Survey |
Tutton et al. (2018) [39] | UK | 1 trial | NA | 20 | Qualitative | Interviews |
Wootten et al. (2011) [40] | Australia | 5 trials | NA | 14 (of 30 deemed eligible) | Qualitative | FGDs |
Yessis et al. (2012) [41] | USA | Multiple research projects; 15 centres | 76 | 4961 (26%) | Quantitative | Survey |
Yoder et al. (1997) [42] | USA | 1 trial, 1 facility | 23 for initial interview and 12 questions for exit interview | 37 | Qualitative | Interviews |
Zaharoff & Cipra (2018) [43] | USA | Multiple trials, 1 facility | NA | 21 | Qualitative | FGDs |