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Table 1 Summary of articles from 1985 to 2018 reporting on clinical trial experience of adult participants in countries and areas with health care settings similar to Switzerland

From: Methodological approaches for conducting follow-up research with clinical trial participants: a scoping review and expert interviews

Study

Geographical location(s)

Number of trials or facilities in the study

Items

Number of participants (response rate)

Study design

Tool

Almeida et al. (2007) [21]

Portugal

Multiple studies, 1 facility

14

136 (100%)

Quantitative

Questionnaire

Au et al. (2015) [22]

Australia

14 trials, 1 facility

37

80 (96%)

Quantitative

Survey

Cox (2000) [23]

UK

Multiple trials

Not reported

55 (NA)

Qualitative

Interviews

DasMahapatra et al. (2017) [24]

International

PatientsLikeMe platform

12

1621 (24%)

Quantitative

Survey

Dayer et al. (2017) [25]

Switzerland

1 trial, 1 facility

24

103 (90%)

Quantitative

Survey

Harrop et al. (2016) [26]

UK

1 trial, multicentre

NA

10 (NA)

Qualitative

Interviews

Henzlova et al. (1994) [27]

USA & Canada

1 trial, 83 hospitals

10

3522 (74%)

Quantitative

Questionnaire

Johnson et al. (2008) [28]

UK

1 trial, 89 facilities

Not reported

1431 (37%)

Quantitative

Questionnaire

Kost et al. (2011) [29]

USA

Multiple trials, 10 centres

NA

96 (NA)

Qualitative

FGDs

Kost et al. (2014) [30]

USA

Multiple research projects; 15 centres

77

4961/18890 (26%)

Quantitative

Survey

Kvale et al. (2010) [31]

USA

1 trial, 1 facility

Not reported

4 (NA)

Qualitative

Interview

Lawton et al. (2003) [32]

USA

1 trial, 23 facilities

 

10 (NA)

Qualitative

Interview

Locock & Smith (2011) [33]

UK

Multiple trials

NA

42 (NA)

Qualitative

Interview

Mathieu et al. (2012) [34]

International

1 trial, multifacility

15 for long and 5 for short version

416 (33.4%)

Quantitative

Survey

Mattson et al. (1985) [35]

USA

2 multicentre trials,

Not reported

1202 (80%) for questionnaire

380 (95%) for interview

Mixed-methods

Interviews & questionnaires

Mello et al. (2018) [36]

USA

Multiple trials, 3 facilities

30

771 (79%)

Quantitative

Survey

Pflugeisen et al. (2016) [37]

USA

Multiple trials, 1 institute

45

90 (41%)

Quantitative

Survey

Pope et al. (2003) [38]

Canada

14 trials, 1 facility

39

190 (75%)

Quantitative

Survey

Tutton et al. (2018) [39]

UK

1 trial

NA

20

Qualitative

Interviews

Wootten et al. (2011) [40]

Australia

5 trials

NA

14 (of 30 deemed eligible)

Qualitative

FGDs

Yessis et al. (2012) [41]

USA

Multiple research projects; 15 centres

76

4961 (26%)

Quantitative

Survey

Yoder et al. (1997) [42]

USA

1 trial, 1 facility

23 for initial interview and 12 questions for exit interview

37

Qualitative

Interviews

Zaharoff & Cipra (2018) [43]

USA

Multiple trials, 1 facility

NA

21

Qualitative

FGDs