Attribute | Levels | Sources/references |
---|---|---|
Years after treatment without further scleroderma organ damage | 1. 1 year (opt-out level) | Expert opinion (clinician); Sullivan et al. [18] |
2. 2 years | ||
3. 5 years | ||
4. 10 years | ||
Immune suppression treatment and risk of immediate complications | 1. No additional risk of immediate complications (opt-out level) | Carreras et al. [26] |
2. Chemotherapy; risk of complications which could lead to death: 10% (10 in 100) | ||
3. Low dose chemotherapy and full body irradiation; risk of complications which could lead to death: 5% (5 in 100) | ||
4. Low dose chemotherapy and targeted irradiation; risk of complications which could lead to death: 2.5% (2.5 in 100) | ||
Late complications (i.e., cancer) | 1. No additional risk of late complications (opt-out level) | |
2. Risk of late complication from treatment (e.g., cancer) in the future: 5% (5 in 100) | ||
3. Risk of late complication from treatment (e.g., cancer) in the future: 10% (10 in 100) | ||
4. Risk of late complication from treatment (e.g., cancer) in the future: 20% (20 in 100) | ||
Team care (in addition to the standard medical care) | 1. No additional team members (opt-out level) | Qualitative work |
2. Extended medical team: rheumatologist, hematologist, cardiologist, respirologist, nurse | ||
3. Multidisciplinary care: extended medical team + allied health professionals to provide mental, wellbeing and nutritional support | ||
Number of people with scleroderma the hematologist has treated using AHSC treatment | 1. No information (opt-out level) | Qualitative work/expert opinion (patient/clinician) |
2. Less than 5 patients | ||
3. 5 or more patients | ||
Additional cost to you (expenses not covered by the provincial health plan, nor your health insurance) | 1. No additional costs (opt-out level) | Qualitative work/expert opinion (patient) |
2. $0–$1,000 | ||
3. $1000–$5000 | ||
4. $5000–$10,000 | ||
Additional distance of treatment center to your home | 1. 0 km (opt-out level) | Qualitative work/expert opinion (patient) |
2. Between 50 and 300 km | ||
3. Between 300 and 1000 km | ||
4. More than 1000 km |