TY - STD TI - Virtual Trials Archive [Available from: www.virtualtrialsarchives.org. UR - http://www.virtualtrialsarchives.org ID - ref1 ER - TY - JOUR AU - Hanratty, B. AU - Burton, J. K. AU - Goodman, C. AU - Gordon, A. L. AU - Spilsbury, K. PY - 2020 DA - 2020// TI - Covid-19 and lack of linked datasets for care homes JO - BMJ. VL - 369 UR - https://doi.org/10.1136/bmj.m2463 DO - 10.1136/bmj.m2463 ID - Hanratty2020 ER - TY - JOUR AU - Moore, D. C. AU - Hanratty, B. PY - 2013 DA - 2013// TI - Out of sight, out of mind? A review of data available on the health of care home residents in longitudinal and nationally representative cross-sectional studies in the UK and Ireland JO - Age Ageing VL - 42 UR - https://doi.org/10.1093/ageing/aft125 DO - 10.1093/ageing/aft125 ID - Moore2013 ER - TY - JOUR AU - Burton, J. K. AU - Lynch, E. AU - Love, S. AU - Rintoul, J. AU - Starr, J. M. AU - Shenkin, S. D. PY - 2019 DA - 2019// TI - Who lives in Scotland’s care homes? Descriptive analysis using routinely collected social care data 2012-16 JO - J R Coll Physicians Edinb VL - 49 UR - https://doi.org/10.4997/JRCPE.2019.103 DO - 10.4997/JRCPE.2019.103 ID - Burton2019 ER - TY - JOUR AU - Matthews, F. E. AU - Arthur, A. AU - Barnes, L. E. AU - Bond, J. AU - Jagger, C. AU - Robinson, L. PY - 2013 DA - 2013// TI - A two-decade comparison of prevalence of dementia in individuals aged 65 years and older from three geographical areas of England: results of the Cognitive Function and Ageing Study I and II JO - Lancet. VL - 382 UR - https://doi.org/10.1016/S0140-6736(13)61570-6 DO - 10.1016/S0140-6736(13)61570-6 ID - Matthews2013 ER - TY - JOUR AU - Steptoe, A. AU - Breeze, E. AU - Banks, J. AU - Nazroo, J. PY - 2013 DA - 2013// TI - Cohort profile: the English longitudinal study of ageing JO - Int J Epidemiol VL - 42 UR - https://doi.org/10.1093/ije/dys168 DO - 10.1093/ije/dys168 ID - Steptoe2013 ER - TY - STD TI - Kingston A, Robinson L, Booth H, Knapp M, Jagger C, Project M. Projections of multi-morbidity in the older population in England to 2035: estimates from the Population Ageing and Care Simulation (PACSim) model. Age Ageing 2018;47(3):374–380. ID - ref7 ER - TY - JOUR AU - Bone, A. E. AU - Gomes, B. AU - Etkind, S. N. AU - Verne, J. AU - Murtagh, F. E. M. AU - Evans, C. J. PY - 2018 DA - 2018// TI - What is the impact of population ageing on the future provision of end-of-life care? Population-based projections of place of death JO - Palliat Med VL - 32 UR - https://doi.org/10.1177/0269216317734435 DO - 10.1177/0269216317734435 ID - Bone2018 ER - TY - JOUR AU - Finucane, A. M. AU - Bone, A. E. AU - Evans, C. J. AU - Gomes, B. AU - Meade, R. AU - Higginson, I. J. PY - 2019 DA - 2019// TI - The impact of population ageing on end-of-life care in Scotland: projections of place of death and recommendations for future service provision JO - BMC Palliat Care VL - 18 UR - https://doi.org/10.1186/s12904-019-0490-x DO - 10.1186/s12904-019-0490-x ID - Finucane2019 ER - TY - BOOK PY - 2017 DA - 2017// TI - Themed review: advancing care ID - ref10 ER - TY - JOUR AU - Ioannidis, J. P. AU - Greenland, S. AU - Hlatky, M. A. AU - Khoury, M. J. AU - Macleod, M. R. AU - Moher, D. PY - 2014 DA - 2014// TI - Increasing value and reducing waste in research design, conduct, and analysis JO - Lancet. VL - 383 UR - https://doi.org/10.1016/S0140-6736(13)62227-8 DO - 10.1016/S0140-6736(13)62227-8 ID - Ioannidis2014 ER - TY - JOUR AU - Taichman, D. B. AU - Backus, J. AU - Baethge, C. AU - Bauchner, H. AU - Leeuw, P. W. AU - Drazen, J. M. PY - 2016 DA - 2016// TI - Sharing clinical trial data: a proposal from the International Committee of Medical Journal Editors JO - Ethiop J Health Sci VL - 26 UR - https://doi.org/10.4314/ejhs.v26i1.2 DO - 10.4314/ejhs.v26i1.2 ID - Taichman2016 ER - TY - JOUR AU - Taichman, D. B. AU - Sahni, P. AU - Pinborg, A. AU - Peiperl, L. AU - Laine, C. AU - James, A. PY - 2017 DA - 2017// TI - Data sharing statements for clinical trials JO - Dtsch Arztebl Int VL - 114 ID - Taichman2017 ER - TY - JOUR AU - Hopkins, C. AU - Sydes, M. AU - Murray, G. AU - Woolfall, K. AU - Clarke, M. AU - Williamson, P. PY - 2016 DA - 2016// TI - UK publicly funded clinical trials units supported a controlled access approach to share individual participant data but highlighted concerns JO - J Clin Epidemiol VL - 70 UR - https://doi.org/10.1016/j.jclinepi.2015.07.002 DO - 10.1016/j.jclinepi.2015.07.002 ID - Hopkins2016 ER - TY - JOUR AU - Rockhold, F. AU - Bromley, C. AU - Wagner, E. K. AU - Buyse, M. PY - 2019 DA - 2019// TI - Open science: the open clinical trials data journey JO - Clin Trials VL - 16 UR - https://doi.org/10.1177/1740774519865512 DO - 10.1177/1740774519865512 ID - Rockhold2019 ER - TY - STD TI - DACHA data contribution form [Available from: http://www.virtualtrialsarchives.org/dacha-data-contribution-form/]. UR - http://www.virtualtrialsarchives.org/dacha-data-contribution-form/ ID - ref16 ER - TY - JOUR AU - Ali, M. AU - Bath, P. AU - Brady, M. AU - Davis, S. AU - Diener, H. C. AU - Donnan, G. PY - 2012 DA - 2012// TI - Development, expansion, and use of a stroke clinical trials resource for novel exploratory analyses JO - Int J Stroke VL - 7 UR - https://doi.org/10.1111/j.1747-4949.2011.00735.x DO - 10.1111/j.1747-4949.2011.00735.x ID - Ali2012 ER - TY - JOUR AU - Ali, M. AU - Bath, P. M. AU - Curram, J. AU - Davis, S. M. AU - Diener, H. C. AU - Donnan, G. A. PY - 2007 DA - 2007// TI - The virtual international stroke trials archive JO - Stroke. VL - 38 UR - https://doi.org/10.1161/STROKEAHA.106.473579 DO - 10.1161/STROKEAHA.106.473579 ID - Ali2007 ER - TY - JOUR AU - Doubal, F. N. AU - Ali, M. AU - Batty, G. D. AU - Charidimou, A. AU - Eriksdotter, M. AU - Hofmann-Apitius, M. PY - 2017 DA - 2017// TI - Big data and data repurposing - using existing data to answer new questions in vascular dementia research JO - BMC Neurol VL - 17 UR - https://doi.org/10.1186/s12883-017-0841-2 DO - 10.1186/s12883-017-0841-2 ID - Doubal2017 ER - TY - JOUR AU - McDicken, J. A. AU - Elliott, E. AU - Blayney, G. AU - Makin, S. AU - Ali, M. AU - Larner, A. J. PY - 2019 DA - 2019// TI - Accuracy of the short-form Montreal Cognitive Assessment: systematic review and validation JO - Int J Geriatr Psychiatry VL - 34 UR - https://doi.org/10.1002/gps.5162 DO - 10.1002/gps.5162 ID - McDicken2019 ER - TY - JOUR AU - MacIsaac, R. L. AU - Ali, M. AU - Taylor-Rowan, M. AU - Rodgers, H. AU - Lees, K. R. AU - Quinn, T. J. PY - 2017 DA - 2017// TI - Use of a 3-item short-form version of the Barthel Index for use in stroke: systematic review and external validation JO - Stroke. VL - 48 UR - https://doi.org/10.1161/STROKEAHA.116.014789 DO - 10.1161/STROKEAHA.116.014789 ID - MacIsaac2017 ER - TY - JOUR AU - Hurford, R. AU - Vail, A. AU - Heal, C. AU - Ziai, W. C. AU - Dawson, J. AU - Murthy, S. B. PY - 2019 DA - 2019// TI - Oedema extension distance in intracerebral haemorrhage: association with baseline characteristics and long-term outcome JO - Eur Stroke J VL - 4 UR - https://doi.org/10.1177/2396987319848203 DO - 10.1177/2396987319848203 ID - Hurford2019 ER - TY - JOUR AU - Kasner, S. E. AU - Siegler, J. E. AU - Zamzam, A. AU - Kleindorfer, D. AU - Collaborators, V. I. -. A. PY - 2019 DA - 2019// TI - Expanding eligibility in stroke prevention trials to patients with early disability JO - J Stroke Cerebrovasc Dis VL - 28 UR - https://doi.org/10.1016/j.jstrokecerebrovasdis.2019.05.016 DO - 10.1016/j.jstrokecerebrovasdis.2019.05.016 ID - Kasner2019 ER - TY - JOUR AU - Tierney, J. F. AU - Vale, C. AU - Riley, R. AU - Smith, C. T. AU - Stewart, L. AU - Clarke, M. PY - 2015 DA - 2015// TI - Individual participant data (IPD) meta-analyses of randomised controlled trials: guidance on their use JO - PLoS Med VL - 12 UR - https://doi.org/10.1371/journal.pmed.1001855 DO - 10.1371/journal.pmed.1001855 ID - Tierney2015 ER - TY - JOUR AU - Stewart, L. A. AU - Clarke, M. AU - Rovers, M. AU - Riley, R. D. AU - Simmonds, M. AU - Stewart, G. PY - 2015 DA - 2015// TI - Preferred Reporting Items for Systematic Review and Meta-Analyses of individual participant data: the PRISMA-IPD Statement JO - JAMA. VL - 313 UR - https://doi.org/10.1001/jama.2015.3656 DO - 10.1001/jama.2015.3656 ID - Stewart2015 ER - TY - STD TI - dachastudy.com 2020 [Available from: http://dachastudy.com/. Accessed 8 Aug 2020. UR - http://dachastudy.com/ ID - ref26 ER - TY - STD TI - Burton JK, Quinn TJ, Gordon AL, MacLullich AMJ, Reynish E, Shenkin SD. Identifying published studies of care home research: an international survey of researchers. J Nurs Home Res Sci. 2017;3:99–102. https://doi.org/10.14283/jnhrs.2017.15. ID - ref27 ER - TY - JOUR AU - Sanford, A. M. AU - Orrell, M. AU - Tolson, D. AU - Abbatecola, A. M. AU - Arai, H. AU - Bauer, J. M. PY - 2015 DA - 2015// TI - An international definition for “nursing home” JO - J Am Med Dir Assoc VL - 16 UR - https://doi.org/10.1016/j.jamda.2014.12.013 DO - 10.1016/j.jamda.2014.12.013 ID - Sanford2015 ER - TY - STD TI - CLAHRC Care Home Research: National Work Stream prepared by NIHR CLAHRC East of England: November 2017. https://www.clahrc-eoe.nihr.ac.uk/wp-content/uploads/2017/12/Cross-CLAHRC-Care-Homes-Research-Summary-Paper-Nov-2017.pdf. UR - https://www.clahrc-eoe.nihr.ac.uk/wp-content/uploads/2017/12/Cross-CLAHRC-Care-Homes-Research-Summary-Paper-Nov-2017.pdf ID - ref29 ER - TY - JOUR AU - Ohmann, C. AU - Banzi, R. AU - Canham, S. AU - Battaglia, S. AU - Matei, M. AU - Ariyo, C. PY - 2017 DA - 2017// TI - Sharing and reuse of individual participant data from clinical trials: principles and recommendations JO - BMJ Open VL - 7 UR - https://doi.org/10.1136/bmjopen-2017-018647 DO - 10.1136/bmjopen-2017-018647 ID - Ohmann2017 ER - TY - JOUR AU - Griffith, L. E. AU - Heuvel, E. AU - Fortier, I. AU - Sohel, N. AU - Hofer, S. M. AU - Payette, H. PY - 2015 DA - 2015// TI - Statistical approaches to harmonize data on cognitive measures in systematic reviews are rarely reported JO - J Clin Epidemiol VL - 68 UR - https://doi.org/10.1016/j.jclinepi.2014.09.003 DO - 10.1016/j.jclinepi.2014.09.003 ID - Griffith2015 ER - TY - JOUR AU - Mukuria, C. AU - Rowen, D. AU - Harnan, S. AU - Rawdin, A. AU - Wong, R. AU - Ara, R. PY - 2019 DA - 2019// TI - An updated systematic review of studies mapping (or cross-walking) measures of health-related quality of life to generic preference-based measures to generate utility values JO - Appl Health Econ Health Policy VL - 17 UR - https://doi.org/10.1007/s40258-019-00467-6 DO - 10.1007/s40258-019-00467-6 ID - Mukuria2019 ER - TY - JOUR AU - Knapp, M. AU - Beecham, J. AU - Koutsogeorgopoulou, V. AU - Hallam, A. AU - Fenyo, A. AU - Marks, I. M. PY - 1994 DA - 1994// TI - Service use and costs of home-based versus hospital-based care for people with serious mental illness JO - Br J Psychiatry VL - 165 UR - https://doi.org/10.1192/bjp.165.2.195 DO - 10.1192/bjp.165.2.195 ID - Knapp1994 ER - TY - JOUR AU - Hartmaier, S. L. AU - Sloane, P. D. AU - Guess, H. A. AU - Koch, G. G. AU - Mitchell, C. M. AU - Phillips, C. D. PY - 1995 DA - 1995// TI - Validation of the Minimum Data Set Cognitive Performance Scale: agreement with the Mini-Mental State Examination JO - J Gerontol A Biol Sci Med Sci VL - 50 UR - https://doi.org/10.1093/gerona/50A.2.M128 DO - 10.1093/gerona/50A.2.M128 ID - Hartmaier1995 ER - TY - JOUR AU - Mulhern, B. AU - Rowen, D. AU - Brazier, J. AU - Smith, S. AU - Romeo, R. AU - Tait, R. PY - 2013 DA - 2013// TI - Development of DEMQOL-U and DEMQOL-PROXY-U: generation of preference-based indices from DEMQOL and DEMQOL-PROXY for use in economic evaluation JO - Health Technol Assess VL - 17 UR - https://doi.org/10.3310/hta17050 DO - 10.3310/hta17050 ID - Mulhern2013 ER - TY - JOUR AU - Ratcliffe, J. AU - Flint, T. AU - Easton, T. AU - Killington, M. AU - Cameron, I. AU - Davies, O. PY - 2017 DA - 2017// TI - An empirical comparison of the EQ-5D-5L, DEMQOL-U and DEMQOL-Proxy-U in a post-hospitalisation population of frail older people living in residential aged care JO - Appl Health Econ Health Policy. VL - 15 UR - https://doi.org/10.1007/s40258-016-0293-7 DO - 10.1007/s40258-016-0293-7 ID - Ratcliffe2017 ER - TY - JOUR AU - Wade, D. T. AU - Collin, C. PY - 1988 DA - 1988// TI - The Barthel ADL Index: a standard measure of physical disability? JO - Int Disabil Stud VL - 10 UR - https://doi.org/10.3109/09638288809164105 DO - 10.3109/09638288809164105 ID - Wade1988 ER - TY - JOUR AU - Vallance, P. AU - Chalmers, I. PY - 2013 DA - 2013// TI - Secure use of individual patient data from clinical trials JO - Lancet. VL - 382 UR - https://doi.org/10.1016/S0140-6736(13)62001-2 DO - 10.1016/S0140-6736(13)62001-2 ID - Vallance2013 ER - TY - JOUR AU - Chan, A. W. AU - Song, F. AU - Vickers, A. AU - Jefferson, T. AU - Dickersin, K. AU - Gotzsche, P. C. PY - 2014 DA - 2014// TI - Increasing value and reducing waste: addressing inaccessible research JO - Lancet. VL - 383 UR - https://doi.org/10.1016/S0140-6736(13)62296-5 DO - 10.1016/S0140-6736(13)62296-5 ID - Chan2014 ER - TY - JOUR AU - Moher, D. AU - Glasziou, P. AU - Chalmers, I. AU - Nasser, M. AU - Bossuyt, P. M. M. AU - Korevaar, D. A. PY - 2016 DA - 2016// TI - Increasing value and reducing waste in biomedical research: who’s listening? JO - Lancet. VL - 387 UR - https://doi.org/10.1016/S0140-6736(15)00307-4 DO - 10.1016/S0140-6736(15)00307-4 ID - Moher2016 ER - TY - JOUR AU - Steen, J. T. AU - Kruse, R. L. AU - Szafara, K. L. AU - Mehr, D. R. AU - Wal, G. AU - Ribbe, M. W. PY - 2008 DA - 2008// TI - Benefits and pitfalls of pooling datasets from comparable observational studies: combining US and Dutch nursing home studies JO - Palliat Med VL - 22 UR - https://doi.org/10.1177/0269216308094102 DO - 10.1177/0269216308094102 ID - Steen2008 ER - TY - JOUR AU - Goodman, C. AU - Baron, N. L. AU - Machen, I. AU - Stevenson, E. AU - Evans, C. AU - Davies, S. L. PY - 2011 DA - 2011// TI - Culture, consent, costs and care homes: enabling older people with dementia to participate in research JO - Aging Ment Health VL - 15 UR - https://doi.org/10.1080/13607863.2010.543659 DO - 10.1080/13607863.2010.543659 ID - Goodman2011 ER -