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Table 5 Outcome measures

From: Community Tele-pal: A community-developed, culturally based palliative care tele-consult randomized controlled trial for African American and White Rural southern elders with a life-limiting illness

 

Domain

Specific measurement

Description of measure

Schedule

Primary aim

Patient

Symptom burden

Edmonton Symptom Assessment Scale (ESAS)

Symptom intensity using visual analog (9 items)

Baseline, day 7, day 30

Secondary aims

Patient

QOL

PROMIS Global Health-10

Evaluates physical, social, and emotional health in healthy and chronically ill adults (10 items)

Baseline, day 7, day 30

Satisfaction

Feeling Heard and Understood

Self-report quality measures for palliative care settings on Likert scale (1 item)

Baseline, day 7, day 30

Resource use

 

Patient resource use (hospital readmissions, # of hospital days, # of ICU days etc.)

Day 30

Caregiver

QOL

PROMIS Global Health-10

Evaluates physical, social, and emotional health in healthy and chronically ill adults (10 items)

Baseline, day 7, day 30

Satisfaction

FamCare

Family satisfaction with availability of care, physical, and psychosocial care, information giving (20 items)

Baseline, day 7, day 30

Caregiver burden

Montgomery Borgatta Caregiver Burden Scale (MBCB)

Subscales objective, subjective, demand burden (14 items)

Baseline, day 7, day 30

Exploratory aim

Patient

Symptom burden

Edmonton Symptom Assessment Scale (ESAS)

Symptom intensity using visual analog (9 items)

Day 7

Caregiver

Caregiver burden

Montgomery Borgatta Caregiver Burden Scale (MBCB)

Subscales objective, subjective, demand burden (14 items)

Day 7

Caregiver

Bereavement

Caregiver Evaluation of Quality of End-of-Life (CEQUEL)

13 items

2–3 months

Bereavement

Core Bereavement Items (CBI)

Subscales/Item (7 items)

2–3 months