| Domain | Specific measurement | Description of measure | Schedule |
---|---|---|---|---|
Primary aim | ||||
Patient | Symptom burden | Edmonton Symptom Assessment Scale (ESAS) | Symptom intensity using visual analog (9 items) | Baseline, day 7, day 30 |
Secondary aims | ||||
Patient | QOL | PROMIS Global Health-10 | Evaluates physical, social, and emotional health in healthy and chronically ill adults (10 items) | Baseline, day 7, day 30 |
Satisfaction | Feeling Heard and Understood | Self-report quality measures for palliative care settings on Likert scale (1 item) | Baseline, day 7, day 30 | |
Resource use | Â | Patient resource use (hospital readmissions, # of hospital days, # of ICU days etc.) | Day 30 | |
Caregiver | QOL | PROMIS Global Health-10 | Evaluates physical, social, and emotional health in healthy and chronically ill adults (10 items) | Baseline, day 7, day 30 |
Satisfaction | FamCare | Family satisfaction with availability of care, physical, and psychosocial care, information giving (20 items) | Baseline, day 7, day 30 | |
Caregiver burden | Montgomery Borgatta Caregiver Burden Scale (MBCB) | Subscales objective, subjective, demand burden (14 items) | Baseline, day 7, day 30 | |
Exploratory aim | ||||
Patient | Symptom burden | Edmonton Symptom Assessment Scale (ESAS) | Symptom intensity using visual analog (9 items) | Day 7 |
Caregiver | Caregiver burden | Montgomery Borgatta Caregiver Burden Scale (MBCB) | Subscales objective, subjective, demand burden (14 items) | Day 7 |
Caregiver | Bereavement | Caregiver Evaluation of Quality of End-of-Life (CEQUEL) | 13 items | 2–3 months |
Bereavement | Core Bereavement Items (CBI) | Subscales/Item (7 items) | 2–3 months |