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Table 1 The three axes of paediatric-adult transition programme

From: Impact of a paediatric-adult care transition programme on the health status of patients with sickle cell disease: study protocol for a randomised controlled trial (the DREPADO trial)

Axes

Public

Objectives

Contents

Practical details

Providers

Educative

Patient and caregiver dyad

Providing self-care knowledge and skills related to SCD and therapeutics

Knowledge and coping skills, with patient needs assessment

Face to face At patients’ home 3 sessions of 2 h

One healthcare professional, trained in patient education and in SCD

Psychological

Individual patient i

Helping empower patients in relation to pain management and emotions

Knowledge and coping skills, with patient needs assessment

Face to face

At hospital 6 sessions of 1.5 h

One healthcare professional, trained in therapeutic hypnosis and in SCD

Social

Group of 4 to 8 patients

Facilitating the relationship with oneself, others, and care

Coping skills

Face toface

At ‘neutral place’ as association patient place 2 sessions of 2 h

One healthcare professional and one expert patient, both trained in patient education and in SCD

  1. h hour, SCD sickle cell disease