Table 3 Outcome measures used at different time points

 Quality of life

Parkinson’s Disease Questionnaire (PDQ-39) [24]

X

X

X

 Motor symptoms

Movement Disorders Society-sponsored revision of the Unified Parkinson’s Disease Rating Scale part III (MDS-UPDRS part III) [25]

X

X

X

 Longitudinal PD symptoms

Movement Disorders Society-sponsored revision of the Unified Parkinson’s Disease Rating Scale parts I, II, and IV (MDS-UPDRS parts I, II, and IV) [25]

X

X

X

 Mobility

Timed Up and Go (TUG) [26]

X

X

X

 Nonmotor symptoms (anxiety and depression)

Hamilton Anxiety and Depression Scale (HADS) [27]

X

X

X

 Nonmotor symptoms (e.g., sleep, incontinence, constipation)

Scales for Outcomes in Parkinson’s Disease–Autonomic Questionnaire and Sleep Questionnaire (SCOPA-AUT) [28], SCOPA-SLEEP [29]

X

X

X

 Health-related quality of life

EuroQoL-5D (EQ-5D) [30]

X

X

X

 Experienced quality of care

Consumer Quality Index (CQI) [31]

X

X

X

 Self-management

Patient Activation Measure (PAM13) [32]

X

X

X

 Medication adherence

Morisky Medication Adherence Scale (MMAS) [33]

X

X

X

 Health-related quality of life

EuroQoL-5D (EQ-5D) [30]

X

X

X

 Caregiver burden [24]

Zarit Caregiver Burden Index (ZBI) [34]

X

X

X

 Caregiver quality of life

CarerQol-7D [35]

X

X

X

 Skills of proactive coping

Utrecht Proactive Coping Competence Scale (UPCC) [36]

X

X

X

 Medical consumption of the patient

Medical Consumption Questionnaire (MCQ) [37]

X

 Productivity loss of the patient

Productivity Cost Questionnaire (PCQ) [38]

X

 Medical consumption of the caregiver related to caregiver burden

Medical Consumption Questionnaire (MCQ) specifically adapted for andaimed at caregivers [37]

 Productivity loss of the caregiver related to caregiver burden

Productivity Cost Questionnaire (PCQ) specifically adapted for and aimed at caregivers [38]

X