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Table 2 Specific nursing interventions according to the Dutch guideline for nursing care in Parkinson’s disease that are also reminiscent of the Fundamentals of Care Framework

From: The cost-effectiveness of specialized nursing interventions for people with Parkinson’s disease: the NICE-PD study protocol for a randomized controlled clinical trial

Area

Interventions

Mental function

Providing information and education

Activation and supporting the creation of a day structure

Supporting the caregiver

Fatigue

Supporting the intake of food with sufficient caloric value

Promoting physical exercise

Structuring daily activities

Sleep

Providing sleep hygiene advice (e.g., no alcohol or caffeine before sleep, no watching television or using the computer before sleep)

Changing medication in consultation with the neurologist in case of nocturnal on/off fluctuations

Urogenital functions

Advising to drink 1.5–2.0 L of fluid per day

Advising the reduction of fluid intake before sleep

Advising the intake of food rich in fibers

Sexuality

Providing information and education

Providing specific advice according to the type of sexual dysfunction (e.g., reduced sexual desire, erectile dysfunction)

Medication adherence

Providing information and education about the timing and intake of medication (e.g., with water, not with milk)

Stimulating medication adherence

Orthostatic hypotension

Advising to wear support stockings

Advising to have sufficient salt and fluid intake per day

Providing advice about postural changes

Caregiver burden

Providing information and education

Refer the caregiver for cognitive behavioral therapy

Refer the caregiver to a Parkinson’s disease-specific support group

Coping

Advising mindfulness training

Supporting patients and caregivers to view problems from different perspectives to develop new strategies for solving these problems

Refer for cognitive behavioral therapy

Mobility

Applying cognitive movement strategies

Applying external cues

Stimulating the patient to perform sufficient physical exercise

Self-management

Stimulating the patient to ask questions

Providing individualized patient-related information

Asking if the provided information matches the patient’s question

Dietary issues

Providing information and education about problems with food absorption (e.g., because of the interaction with protein intake)

Preventing accidental weight loss

Providing advice about oral care

  1. Dutch guideline for nursing care in Parkinson’s disease [11]; Fundamentals of Care Framework [23]. Note that this list is not exhaustive