Domain | Assessment | Test tool (outcome measure) | Administered by |
---|---|---|---|
Quality of life (QoL) | Generic QoL | All participants | |
The patient’s disease-specific QoL | QoL after Brain Injury (Qolibri) [54] | Participants with TBI | |
International Spinal Cord Injury QoL Basic Data Set [55] | Participants with tSCI | ||
Self-perceived burden | General burden, isolation, disappointment, emotional involvement, environment | Caregivers | |
Physical, emotional and financial burden | Self-Perceived Burden Scale (SPB) [57] | Participants with TBI or tSCI | |
Family dynamic | Flexibility | Family Adaptability and Cohesion Evaluation Scales-IV (FACES-IV) [58] | All participants |
Cohesion | |||
Communication | |||
Problem-solving abilities | Confidence | Problem-Solving Inventory (PSI) [59] | All participants |
Personal control | |||
Approach-avoidance | |||
Mental health | Depression | Patient Health Questionnaire-9 (PHQ-9) [60] | All participants |
Anxiety | Generalized Anxiety Disorder-7 (GAD-7) [61] | ||
Satisfaction with life | Satisfaction with Life Scale (SWLS) [62] | ||
Relationship | Relationship to relatives | All participants if a dyad | |
Resilience | Resilience and robustness | The Resilience Scale for Adults (RSA) [66] | All participants |