Table 2 Characteristics of included trials and number of participants
Study ID | Trial condition/ population | Trial setting | Total participants n (%) | Participants who lacked capacity to consent n (%) | Personal consultee/legal representative n (%) | Nominated consultee or professional legal representative n (%) |
|---|---|---|---|---|---|---|
01 | Parkinson’s disease | Community | 76 | 4 (5%) | 4 (100%) | 0 |
02 | Dementia | Care homes | 34 | 34 (100%) | 34 (100%) | 0 |
03 | Dementia | Care homes | 40 | 40 (100%) | 0 | 40 (100%) |
04 | Dementia | Community | 63 | 23 (37%) | 23 (100%) | 0 |
05 | Dementia | Hospitals and care homes | 14# | - | - | - |
06 | Dementia | Hospitals and care homes | 265 | - | - | - |
07 | Dementia | Care homes | 987 | 784 (79%) | 336 (43%) | 448 (57%) |
08 | Learning disabilities | Community | 312 | 185$(59%) | – | – |
09 | Learning disabilities | Community | 22 | 18 (82%) | 12 (67%) | 6 (33%) |
10 | Stroke | Hospitals and community | 345 | 88 (26%) | 88 (100%) | 0 |
11 | Stroke | Hospitals | 1148* | 540*(47%) | 425*(79%) | 115*(21%) |
12 | Critical care | Hospitals | 120# | - | - | - |
13 | Critical care | Hospitals | 103 | 100 (97%) | 75 (75%) | 25 (25%) |
14 | Critical care | Hospitals | 84 | - | - | - |
15 | Emergency | Hospitals | 81# | - | - | - |