Table 2 Quality of life at baseline
PedsQL sickle cell disease module scales | Number of items | This study | Panepinto et al. [30] | ||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|
n | Mean | SD | % Floor | % Ceiling | n | Mean | SD | % Floor | % Ceiling | ||
Child self-report | |||||||||||
SCD total score | 43 | 9/11 | 240 | 62.4 | 18.6 | 0 | 0.6 | ||||
Pain and hurt | 9 | 9/11 | 81.2 | 21.4 | 0 | 11 | 243 | 66.7 | 20.9 | 0 | 5.3 |
Pain impact | 10 | 9/11 | 71.4 | 24.4 | 0 | 11 | 239 | 54.0 | 24.8 | 0.3 | 5.6 |
Pain management and control | 2 | 9/11 | 80.6 | 19.9 | 0 | 44 | 235 | 54.9 | 29.9 | 7.5 | 10.6 |
Worry I | 5 | 9/11 | 71.1 | 19.6 | 0 | 11 | 240 | 63.5 | 26.2 | 0.9 | 10.0 |
Worry II | 2 | 9/11 | 94.4 | 11.0 | 0 | 78 | 182 | 73.4 | 29.7 | 3.7 | 22.1 |
Emotions | 2 | 8/11 | 54.7 | 35.9 | 13 | 25 | 238 | 62.0 | 33.1 | 8.4 | 19.3 |
Treatment | 7 | 8/11 | 79.9 | 21.2 | 0 | 25 | 237 | 64.3 | 21.9 | 0.3 | 4.0 |
Communication I | 3 | 8/11 | 76.0 | 21.6 | 0 | 37.5 | 239 | 73.8 | 24.9 | 0.3 | 23.4 |
Communication II | 3 | 8/11 | 59.4 | 45.1 | 13 | 37.5 | 236 | 57.2 | 30.5 | 4.7 | 13.4 |
Adult core PedsQL | |||||||||||
Physical | 8 | 10/10 | 64.4 | 26.8 | 0 | 0 | |||||
Psychosocial | 15 | 10/10 | 75.2 | 18.3 | 0 | 0 | |||||
Emotion | 5 | 10/10 | 74.0 | 19.3 | 0 | 20 | |||||
Social | 5 | 10/10 | 77.5 | 21.5 | 0 | 20 | |||||
Work | 5 | 10/10 | 74.0 | 19.4 | 0 | 10 | |||||