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Table 2 Response to Question 1, overall and according to factors that might influence experience

From: Women’s experiences of participating in a randomised trial comparing alternative policies for timing of cord clamping at very preterm birth: a questionnaire study

  ‘If time suddenly went backwards, and you had to do it all over again, would you agree to participate in the Cord Pilot Trial?’
First (at 4–8 weeks) Second (at 1 year)
Definitely no Probably no Not sure Probably yes Definitely yes Definitely no Probably no Not sure Probably yes Definitely yes
Total 2 (1%) 1 (1%) 9 (5%) 36 (20%) 131 (73%) 1 (1%) 2 (2%) 6 (5%) 19 (15%) 103 (79%)
 Clamping after ≥ 2 min + neonatal care with cord intact 1 (1%) 3 (3%) 17 (18%) 75 (78%) 1 (1%) 1 (1%) 11 (13%) 69 (84%)
 Clamping ≤ 20 s + neonatal care after clamping 1 (1%) 1 (1%) 6 (7%) 19 (23%) 56 (67%) 1 (2%) 1 (2%) 5 (10%) 8 (16%) 34 (69%)
Gestation at birth (weeks) < 26 1 (4%) 1 (4%) 3 (13%) 18 (78%) 1 (7%) 3 (20%) 11 (73%)
 26+ 0–27+ 6 2 (5%) 8 (22%) 27 (73%) 1 (4%) 2 (9%) 20 (87%)
 28+ 0–29+ 6 1 (2%) 2 (3%) 17 (29%) 39 (66%) 1 (2%) 1 (2%) 9 (21%) 31 (74%)
 30+ 0 –31+ 6 1 (2%) 4 (7%) 8 (14%) 45 (78%) 1 (2%) 3 (6%) 5 (11%) 38 (81%)
 ≥ 32 2 (100%) 1 (25%) 3 (75%)
Consent pathway
 usual one-stage 2 (1%) 1 (1%) 6 (4%) 28 (21%) 99 (73%) 1 (1%) 2 (2%) 6 (6%) 8 (8%) 81 (83%)
 two-stage 3 (7%) 8 (19%) 32 (74%) 11 (33%) 22 (67%)
Age at trial entry (years) < 20 1 (11%) 3 (33%) 5 (56%) 1 (50%) 1 (50%)
 20–24 1 (4%) 5 (19%) 20 (77%) 1 (6%) 4 (24%) 12 (71%)
 25–29 1 (3%) 2 (5%) 4 (11%) 31 (82%) 1 (4%) 2 (8%) 1 (4%) 21 (84%)
 30–34 2 (3%) 4 (6%) 15 (22%) 47 (69%) 1 (2%) 1 (2%) 8 (15%) 43 (81%)
 35–39 7 (26%) 20 (74%) 5 (22%) 18 (78%)
 ≥ 40 1 (9%) 2 (18%) 8 (73%) 1 (9%) 1 (9%) 1 (9%) 8 (73%)
Blood loss at birth (ml) 0–499 1 (1%) 1 (1%) 4 (4%) 18 (20%) 65 (73%) 5 (8%) 10 (16%) 48 (76%)
 500–999 4 (6%) 16 (23%) 51 (72%) 2 (4%) 1 (2%) 7 (13%) 44 (81%)
 ≥ 1000 1 (5%) 1 (5%) 2 (11%) 15 (79%) 1 (7%) 2 (14%) 11 (79%)
For baby, length of stay > 6 weeks 1 (1%) 1 (1%) 4 (3%) 27 (21%) 95 (74%) 1 (1%) 1 (1%) 3 (3%) 13 (15%) 69 (79%)
Hospital Anxiety and Depression Scale depression score ≥ 8 1 (2%) 6 (12%) 9 (17%) 36 (69%) 5 (20%) 20 (80%)
Baby died before questionnaire completed (including stillbirths) 1 (25%) 1 (25%) 2 (50%) 1 (25%) 3 (75%)
Questionnaire completed after reminder 2 (2%) 3 (4%) 17 (21%) 59 (73%) 1 (1%) 1 (1%) 6 (7%) 14 (17%) 60 (73%)
Recruited period
 First year (feasibility phase) 1 (1%) 4 (5%) 19 (22%) 62 (72%) 1 (1%) 5 (7%) 10 (14%) 54 (77%)
 Second year 1 (1%) 1 (1%) 5 (5%) 17 (18%) 69 (74%) 1 (2%) 1 (2%) 1 (2%) 9 (15%) 49 (80%)
  1. Note:
  2. ▪ 7 of the 186 participants returning the first questionnaire did not complete this question including one of the participants whose baby died (3 in the clamp cord after at least 2 min group and 4 in the clamp cord within 20 s group)
  3. ▪ 2 of the 132 participants returning the second questionnaire at 1 year did not complete this question (1 in each group)