Table 1 Health-related quality of life assessments
Instrument name | # items | Response options | Other information | |
|---|---|---|---|---|
Depression | PROMIS short-form Depression-8aa | 8 | Never, rarely, sometimes, often, always | Alpha 0.92; developed with IRT [40] |
Anxiety | PROMIS short-form Anxiety-8 | 8 | Never, rarely, sometimes, often, always | Very good reliability; developed with IRT [40] |
Fatigue | PROMIS short-form 7-item Fatigue | 7 | Never, rarely, sometimes, often, always | Alpha 0.87; developed with IRT [40] |
Empathy | Interpersonal Reactivity Index | 28 | 5 responses from “does not describe me well” to “describes me very well” | Four subscales: perspective-taking, empathic concern, personal distress, and fantasy); good reliability [41,42,43] |
Social connection | Social Connectedness Scale, Revised | 20 | 6 responses from “strongly agree” to “strongly disagree” | Alpha 0.92 [44] |
Global health-related quality of life | Quality of Life Index | 60 | 6 responses from “very satisfied” to “very dissatisfied”, or from “very important” to “very unimportant” | Alpha 0.87–0.97 (cancer survivors), 0.92–0.93 (informal caregivers) [45] |
Positive affect | Positive and Negative Affect Schedule | 20 | Very slightly or not at all, a little, moderately, quite a bit, and extremely | Alpha 0.87 (positive scale) [46] |
Dyadic function | Relationship Assessment Scale | 7 | 5 responses from “low satisfaction” to “high satisfaction” | Alpha 0.86 [47] |
Self-compassion | Neff Self-Compassion Scale | 26 | 5 responses from “almost never” to “almost always” |