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Table 1 Main characteristics of the included repositories

From: Evaluation of repositories for sharing individual-participant data from clinical studies

Name, URL Scientific scope Source scope Host organisation Main funding Who can upload data?
 1 B2Share, General scientific Continental (Europe) EUDAT centres in various EU countries (Germany, Finland) Public/Academia (EU Commission and other partners) Anyone
 2 Drum, General scientific Institutional University of Minnesota Public/Academia (University of Minnesota) Researcher from University of Minnesota
 3 Dryad, General scientific Global University of North Carolina, British Library and Oxford University Not-for-profit membership organisation Any author of published article
 4 EASY, General scientific National (the Netherlands) Data Archiving and Networked Services Public/Academia (Royal Netherlands Academy of Arts, Sciences/Organisation for Scientific Research) Anyone
 5 Edinburgh DataShare, General scientific Institutional University of Edinburgh Public/Academia (University of Edinburgh) Researcher from University of Edinburgh
 6 Figshare, General scientific Global Figshare (via Amazon web services) Commercial/ Public/Academia Anyone from user organisations
 7 ICPSR, Social and health sciences Global Institute for Social Research (University of Michigan) Public/Academia (university consortium) Anyone
 8 Open Science Framework, General scientific Global Center for Open Science, Virginia (USA) Private Foundation (Laura and John Arnold Foundation) Anyone
 9 Swedish National Data Service, Social and health sciences National (Sweden) University of Gothenburg Public/Academia (university consortium) Anyone (mainly Swedish researchers)
 10 UMIN, Clinical study National (Japan) University Hospital Medical Information Network – University of Tokyo Hospital Public/Academia (trial registry) Investigators of trials registered
 11 Vivli, Clinical study Global Center for global Clinical Research Data, Harvard Non-profit organisation Anyone
 12 Zenodo, General scientific Global CERN (Geneva) Public/Academia (EU Commission and other partners) Anyone
Disease specific
 13 CancerData.Org, Cancer National (The Netherlands) Maastro Clinic (The Netherlands) Health care corporate Not clear
 14 Project Datasphere, Cancer Global CEO Roundtable on Cancer, Inc. (USA) Pharma consortium Researchers/pharma in the field of cancer
 15 EBCTCG, Breast cancer Global Oxford University (UK) Public/Academia (UK Medical Research Council and Cancer Research) Early Breast Cancer Trialists’ Collaborative Group
 16 FreeBird, Injury and emergency medicine Global London School of Hygiene & Tropical Medicine (UK) Public/Academia Researchers in the field of emergency medicine
 17 ITN Trialshare, Allergy, Asthma, Autoimmune disease, Transplantation, National (USA) – collaborative network National Institute of Allergy and Infectious Diseases, NIH (USA) Public/Academia (NIH) Researchers of ITN promoted trial
 18 Melanoma MMP, Melanoma Global Not clear Public/Academia (non-profit association) Apparently anyone (melanoma)
 19 NDACAN, Child abuse and neglected National (USA) National Data Archive on Child Abuse and Neglect (Cornell University) Public/Academia (Children’s Bureau and Department of Health and Human Services) Anyone (child abuse research)
 20 NDCT NIMH, Mental health National (USA) National Institute of Mental Health Public/Academia (NIH) Anyone (mental health-related clinical trial)
 21 NIDDK, Diabetes, digestive, and kidney diseases National (USA) National Institute of Diabetes and Digestive and Kidney Diseases Public/Academia (NIH) Researchers of NIDDK-funded studies
 22 NIH BioLINCC, Heart, lung, blood diseases National (USA) National Heart, Lung, and Blood Institute Public/Academia (NIH) Researchers of NHLBI funded-project
 23 ProAct, Amyotrophic lateral sclerosis Global Prize4Life Israel & Massachusetts General Hospital Not-for-profit/Pharma Data donated by project partners
 24 TBI-IMPACT, Traumatic brain injury Global Antwerp, Rotterdam and Edinburgh Public/Academia Not clear
 25 WWARN, Malaria and other infectious diseases Global University of Oxford Public/Charity Anyone (malaria)
  1. Acronyms: CERN Conseil européen pour la recherche nucléaire; DRUM Data Repository for the University of Minnesota; EASY Electronic Archiving System; EBCTCG Early Breast Cancer Trialists’ Collaborative Group; ITN Immune Tolerance Network; NDACAN National Data Archive on Child Abuse and Neglect; NDCT National Database for Clinical Trials Related to Mental Illness; NHLBI National Heart, Lung, and Blood Institute; NIDDK National Institute of Diabetes and Digestive and Kidney Diseases; NIH National Institute of Health; NIMH National Institute of Mental Health; TBI Traumatic brain injury, UMIN University Medical Information Network; WWAAR WorldWide Antimalarial Resistance Network