Table 1 Categories and sub-categories
Category | Sub-category | Examples of stated reasons |
|---|---|---|
No need for the intervention | Having enough support | Has home healthcare that are responsible for his medications and has social services. Thinks that this is enough support Thinks that she has enough support from her children and grandchildren. Two of the children are physicians who help her. Says that she is fortunate in this sense |
Having no need for support | Doing just fine at home Has been to therapy a couple of years ago and then got all the tools he needed to change things in his life. Has no need for any support | |
The study concept not suiting the patient | Talking doesn’t help at all I have participated in similar things before and it didn’t help at all. Not interested in talking about my situation | |
Not believing they have the diagnosed disease | Doesn’t think that she has COPD Doesn’t feel ill at all and questions that she really has COPD; the study doesn’t seem relevant to her based on this | |
Can’t manage more tasks | Being too sick | Doesn’t have the energy. Too ill right now. Maybe another time No energy and a lot of trouble with breathing. Gets really tired and breathless by talking on the phone |
Not having time for more illness-related activities | Has too many activities scheduled with her COPD; does not want to have more on her schedule Has too much with her dietician, physician, nurse, and so on. Feels stressed over all this; does not want any more stress | |
Taking care of sick relatives | Has too much to do with her husband who has dementia Her husband with Alzheimer’s lives at home with her. He doesn’t want to move and doesn’t want any help from others. She doesn’t want to add any more tasks | |
Not trusting their own ability to participate | Says that he doesn’t understand everything, doesn’t have the energy to participate, and has trouble hearing Has had a stroke which has affected his cognitive abilities; doesn’t want to participate based on this | |
Being in a crisis | Has just got her diagnosis and is upset over this and the situation of her husband, whom she has cared for until now A close relative just passed away | |
Other | Refusing because this was a research study | Has already participated in two research projects; doesn’t have the energy to participate in one more Doesn’t like questionnaires |
Practical reasons | Will be out of town for a few months Doesn’t live in Sweden | |
Unknown reasons | – |