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Table 5 Patient and public involvement (PPI) in stages of the research process (n = 71)

From: Patient and public involvement (PPI) in UK surgical trials: a survey and focus groups with stakeholders to identify practices, views, and experiences

  Number of trials (%)
Research design 58 (81.7%)
 • Research topic or question 16 (22.5%)
 • Funding application 33 (46.5%)
 • Intervention design 21 (29.6%)
 • Participant information materials (e.g. information sheets, consent forms, recruitment adverts) 51 (71.8%)
 • Data collection tools (e.g. questionnaires, interview schedules) 36 (50.7%)
 • Recruitment methods 29 (40.8%)
 • Retention methods 19 (26.8%)
 • Do not know 1 (1.4%)
 • Othera 2 (2.8%)
Undertaking the research 17 (23.9%)
 • Promoting the trial to encourage recruitment 9 (12.7%)
 • Identifying or screening potential participants 8 (11.3%)
 • Taking consent from participants 1 (1.4%%)
 • Collecting research data 2 (2.8%%)
 • Do not know 2 (2.8%)
 • Otherb 1 (1.4%)
Analysis and/or interpretation of results 22 (31.0%)
 • Analysing research data 3 (4.2%)
 • Interpreting data or results 16 (22.5%)
 • Do not know 1 (1.4%)
 • Otherc 3 (4.2%)
Dissemination of findings 42 (59.2%)
 • Writing or reviewing research reports 11 (15.5%)
 • Writing or reviewing lay summaries 32 (45.1%)
 • Presenting the findings at a research conference 6 (8.5%)
 • Presenting the findings to a lay audience 24 (33.8%)
 • Suggesting routes/platforms for dissemination 30 (42.3%)
 • Do not know 3 (4.2%)
 • Other 0 (0.0%)
None of the above 0 (0.0%)
Otherd 2 (2.8%)
  1. aOutcome measures (n = 2)
  2. bDeveloping a video/DVD to aid informed consent (n = 1)
  3. cReviewing interim reports at Trial Steering Committee (TSC) meetings (n = 1); discussing results with PPI group (n = 2)
  4. dGeneral oversight or management of the research (n = 2)