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Table 5 Patient and public involvement (PPI) in stages of the research process (n = 71)

From: Patient and public involvement (PPI) in UK surgical trials: a survey and focus groups with stakeholders to identify practices, views, and experiences

 

Number of trials (%)

Research design

58 (81.7%)

 • Research topic or question

16 (22.5%)

 • Funding application

33 (46.5%)

 • Intervention design

21 (29.6%)

 • Participant information materials (e.g. information sheets, consent forms, recruitment adverts)

51 (71.8%)

 • Data collection tools (e.g. questionnaires, interview schedules)

36 (50.7%)

 • Recruitment methods

29 (40.8%)

 • Retention methods

19 (26.8%)

 • Do not know

1 (1.4%)

 • Othera

2 (2.8%)

Undertaking the research

17 (23.9%)

 • Promoting the trial to encourage recruitment

9 (12.7%)

 • Identifying or screening potential participants

8 (11.3%)

 • Taking consent from participants

1 (1.4%%)

 • Collecting research data

2 (2.8%%)

 • Do not know

2 (2.8%)

 • Otherb

1 (1.4%)

Analysis and/or interpretation of results

22 (31.0%)

 • Analysing research data

3 (4.2%)

 • Interpreting data or results

16 (22.5%)

 • Do not know

1 (1.4%)

 • Otherc

3 (4.2%)

Dissemination of findings

42 (59.2%)

 • Writing or reviewing research reports

11 (15.5%)

 • Writing or reviewing lay summaries

32 (45.1%)

 • Presenting the findings at a research conference

6 (8.5%)

 • Presenting the findings to a lay audience

24 (33.8%)

 • Suggesting routes/platforms for dissemination

30 (42.3%)

 • Do not know

3 (4.2%)

 • Other

0 (0.0%)

None of the above

0 (0.0%)

Otherd

2 (2.8%)

  1. aOutcome measures (n = 2)
  2. bDeveloping a video/DVD to aid informed consent (n = 1)
  3. cReviewing interim reports at Trial Steering Committee (TSC) meetings (n = 1); discussing results with PPI group (n = 2)
  4. dGeneral oversight or management of the research (n = 2)