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Table 2 Changes made to accessible statements following consultation with people living with dementia and care partners

From: Involving people living with dementia in research: an accessible modified Delphi survey for core outcome set development

Pre consultation

Post consultation

Outcome item

Accessible statement

Outcome item

Accessible statement

Working with numbers

Difficulties with numbers; for example, using bus timetables

Numbers

Working with numbers

Language/word finding

Difficulties with language; for example, finding the word you want to say

Words

Finding words you want to use or say

Fear of deterioration

Fear of dementia symptoms getting worse

Dementia getting worse

Fear of dementia getting worse