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Table 1 Summary and timing of stroke survivor and carer assessments

From: An intervention to support stroke survivors and their carers in the longer term (LoTS2Care): study protocol for a cluster randomised controlled feasibility trial

Assessment

Screening

Baseline

Time-point (post registration)

3Ā months

6Ā months

9Ā months

ā€‚Screening

X

Ā Ā Ā Ā 

ā€‚Eligibility

Ā 

X

Ā Ā Ā 

ā€‚Informed consent/Consultee declaration

Ā 

X

Ā Ā Ā 

ā€‚Baseline

Ā 

X

Ā Ā Ā 

ā€‚Registration

Ā 

X

Ā Ā Ā 

Stroke Survivor Questionnaires

ā€‚Demographic details

Ā 

X

Ā Ā Ā 

ā€‚WHODAS 2.0

Ā 

X

Ā 

X

X

ā€‚WEMWBS

Ā 

X

Ā 

X

X

ā€‚PAMĀ® Survey

Ā 

X

X

X

Ā 

ā€‚EQ-5D-5L

Ā 

X

X

X

X

ā€‚ICECAP-A

Ā 

X

X

X

X

ā€‚LUNS

Ā 

X

Ā Ā 

X

ā€‚GP patient survey (two questions)

Ā 

X

X

X

Ā 

ā€‚Social questions

Ā 

X

X

X

Ā 

ā€‚Health and social care resource use (stroke survivor and provider reported)

Ā 

X

X

X

X

ā€‚Adverse events

Ā Ā 

X

X

X

ā€‚Hospital admissions

Ā Ā 

X

X

X

Carer Questionnaires

ā€‚Demographic details (on each carer if applicable)

Ā 

X

(X)

(X)

(X)

ā€‚Caregiver Burden Scale

Ā 

X

X

X

X

ICECAP-A

Ā 

X

X

X

X

ā€‚EQ-5D-5L

Ā 

X

X

X

X

ā€‚Health and social care resource use

Ā 

X

X

X

X

  1. EQ-5D-5L EQ-5D with 5 levels of severity for each of the 5 dimensions, ICECAP-A ICEpop CAPability measure for Adults, LUNS Longer-term Unmet Needs after Stroke tool, PAM Patient Activation Measure, WEMWBS Warwick-Edinburgh Mental Well-being Scale, WHODAS World Health Organization Disability Assessment Schedule