Table 3 Registries used for data linkage during post-trial follow-up (PTFU)

United States Renal Data System (USRDS)

Renal

www.usrds.org

Centres for Medicare and Medicaid Services (CMS ([formerly HCFA))^a

Non-fatal events

www.cms.gov

National Death Index Plus Database

Cause- specific mortality

https://www.cdc.gov/nchs/ndi/

National Death Index and Social Security Administration

All-cause mortality

https://www.cdc.gov/nchs/nvss/deaths.htm

The Central Veterans Affairs Medical Information files

All-cause morbidity

https://www.va.gov/directory/guide/facility.asp?ID=5380

The Veterans Affairs Death Files

All-cause mortality

https://www.archives.gov/research/alic/reference/vital-records.html

Statistics Canada Mortality Database

All-cause mortality

http://www23.statcan.gc.ca/imdb/p2SV.pl?Function=getSurvey&SDDS=3233

NHS Digital (formerly HSCIC and Office of National Statistics)

Non-fatal events, all-cause mortality

https://digital.nhs.uk/

Information and Statistical Division of the National Health Service for Scotland (Scottish Morbidity Record, General Register Office Death Record)

All-cause morbidity, mortality

http://www.isdscotland.org/

Ministry of Health from the Israeli Population Registry

All-cause mortality

https://www.health.gov.il/English/Pages/HomePage.aspx

Israel National Cancer Registry

Cancer

https://www.health.gov.il/English/MinistryUnits/HealthDivision/Icdc/Icr/Pages/default.aspx

Dutch Central Bureau of Statistics

All-cause mortality

http://www.iamexpat.nl/expat-page/official-issues/organisations/statistics-netherlands-cbs

Cardiovascular Disease in Norway (CVDNOR) project (for data < 2008)^b

Cause-specific morbidity

https://cvdnor.b.uib.no/

Cause-of-Death Register (Statistics Finland)

All-cause mortality

http://tilastokeskus.fi/til/ksyyt/index_en.html

Population Register Centre ^c

Demographics

http://vrk.fi/en/frontpage

Finnish Cancer Registry

Cancer

http://www.cancer.fi/syoparekisteri/en/

Western Australia Data Linkage System (WADLS)

Non-fatal events, all-cause mortality

http://www.datalinkage-wa.org.au/