Skip to main content

Table 4 shows the methods used either singularly or in combination to facilitate patient participation. A full breakdown of the methods can be found in Supplementary Information: Additional file 2. Method Combinations

From: Survey indicated that core outcome set development is increasingly including patients, being conducted internationally and using Delphi surveys

Methods used

Published

n (%)

Completed

n (%)

Ongoing

n (%)

Combined

n (%)

Number of COS studies included

37

38

65

140

Delphi survey only

12 (32)

7 (18)

2 (3)

21 (15)

Questionnaire only

2 (5)

0

1 (2)

3 (2)

Qualitative interviews only

0

0

2 (3)

2 (1)

Consensus meeting only

2 (5)

0

0

2 (1)

Focus group only

0

1 (3)

0

1 (1)

Nominal group technique only

0

0

1 (2)

1 (1)

Mixed methods (see descriptions below)

21 (58)

30 (79)

59 (90)

110 (79)

Delphi survey and another method(s)

15 (71)

26 (87)

56 (95)

97 (88)

Consensus meeting and another method(s)

6 (29)

2 (7)

2 (3)

10 (9)

Qualitative interview and another method(s)

0

1 (3)

1 (2)

2 (2)

Focus group and another method(s)

0

1 (3)

0

1 (1)

  1. COS core outcome set