Skip to main content

Advertisement

Table 4 shows the methods used either singularly or in combination to facilitate patient participation. A full breakdown of the methods can be found in Supplementary Information: Additional file 2. Method Combinations

From: Survey indicated that core outcome set development is increasingly including patients, being conducted internationally and using Delphi surveys

Methods used Published n (%) Completed n (%) Ongoing n (%) Combined n (%)
Number of COS studies included 37 38 65 140
Delphi survey only 12 (32) 7 (18) 2 (3) 21 (15)
Questionnaire only 2 (5) 0 1 (2) 3 (2)
Qualitative interviews only 0 0 2 (3) 2 (1)
Consensus meeting only 2 (5) 0 0 2 (1)
Focus group only 0 1 (3) 0 1 (1)
Nominal group technique only 0 0 1 (2) 1 (1)
Mixed methods (see descriptions below) 21 (58) 30 (79) 59 (90) 110 (79)
Delphi survey and another method(s) 15 (71) 26 (87) 56 (95) 97 (88)
Consensus meeting and another method(s) 6 (29) 2 (7) 2 (3) 10 (9)
Qualitative interview and another method(s) 0 1 (3) 1 (2) 2 (2)
Focus group and another method(s) 0 1 (3) 0 1 (1)
  1. COS core outcome set