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Table 2 Frequency of the patient participant groups included in core outcome set (COS) projects by COS development stage

From: Survey indicated that core outcome set development is increasingly including patients, being conducted internationally and using Delphi surveys

Stage of COS development COS including patient participants (n = 140)a
  Patients and patient organisations n (%) Patients only n (%) Patient organisations only n (%)
Published 23 (62a) 14 (38) 0
Completed 28 (74) 10 (26) 0
Ongoing 50 (77) 14 (21) 1 (2)
Total 101 (72) 38 (27) 1 (1)
  1. aNo further information was provided in relation to one published study thus it has been excluded from further analysis