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Table 2 Frequency of the patient participant groups included in core outcome set (COS) projects by COS development stage

From: Survey indicated that core outcome set development is increasingly including patients, being conducted internationally and using Delphi surveys

Stage of COS development

COS including patient participants (n = 140)a

 

Patients and patient organisations

n (%)

Patients only

n (%)

Patient organisations only

n (%)

Published

23 (62a)

14 (38)

0

Completed

28 (74)

10 (26)

0

Ongoing

50 (77)

14 (21)

1 (2)

Total

101 (72)

38 (27)

1 (1)

  1. aNo further information was provided in relation to one published study thus it has been excluded from further analysis