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Table 1 Frequency of patient participation in core outcome set (COS) projects by COS development stage

From: Survey indicated that core outcome set development is increasingly including patients, being conducted internationally and using Delphi surveys

Stage of COS development COS with no patient participants n (%) COS including patient participants n (%)
Published 14 (27) 38 (73)
Completed 3 (7) 38 (93)
Ongoing 4 (6) 65 (94)
Total 21 (13) 141 (87)