From: ‘We knew it was a totally at random thing’: parents’ experiences of being part of a neonatal trial
Key themes | Subthemes |
---|---|
Deciding to take part | Benefitting others: |
• Giving something back | |
• Helping other babies and families | |
• Improving the provision of care | |
Benefitting self, baby and family: | |
• Feeling valued | |
• Access to information and knowledge | |
• Hoping for magnetic resonance imaging (MRI) result | |
• Support from research team | |
• Prompt and early diagnosis | |
Being prepared: | |
• Thinking through what is involved and what might happen | |
• Inadequate information about the study | |
The randomisation process | Accepting the process: |
• What we would have liked | |
Understanding randomisation: | |
• An equal chance | |
• Only one result | |
Actual engagement | Practicalities: |
• The way the study was conducted | |
• Impact on parents | |
Care from responsive staff: | |
• Being looked after | |
• Needs recognised |