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Table 1 Key themes and subthemes relating to participation in trial and follow-up

From: ‘We knew it was a totally at random thing’: parents’ experiences of being part of a neonatal trial

Key themes

Subthemes

Deciding to take part

Benefitting others:

 • Giving something back

 • Helping other babies and families

 • Improving the provision of care

Benefitting self, baby and family:

 • Feeling valued

 • Access to information and knowledge

 • Hoping for magnetic resonance imaging (MRI) result

 • Support from research team

 • Prompt and early diagnosis

Being prepared:

 • Thinking through what is involved and what might happen

 • Inadequate information about the study

The randomisation process

Accepting the process:

 • What we would have liked

Understanding randomisation:

 • An equal chance

 • Only one result

Actual engagement

Practicalities:

 • The way the study was conducted

 • Impact on parents

Care from responsive staff:

 • Being looked after

 • Needs recognised