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Table 9 Perceived trial benefits or advantages

From: How informed is declared altruism in clinical trials? A qualitative interview study of patient decision-making about the QUEST trials (Quality of Life after Mastectomy and Breast Reconstruction)

It was a positive for me, it was something I could do that was a positive from it all basically. I think lots of things that happen to you when you’re having surgery and going through this procedure, you’ve got no control over, but actually I could choose what I wanted to do. I could feel that there was some positive coming out of it whatever the outcome was for me, which was quite nice.

Trial acceptor, full understanding of randomisation (participant 5)

Yes, I do actually because, like yourself ringing me now, because I thought someone would ring in a month and then three and so on. You're getting to know how I'm feeling to help other people. And, also, you're keeping checks on how we're doing which I think is a brilliant thing, more so than if I wasn't doing the QUEST.

Trial acceptor, did not fully understand randomisation (participant 12)

I thought I’d get the best care because they’re [QUEST investigators] really interested in what you’ve got to say and how you feel and I thought well, this way and also that other women could benefit by it as well.

Trial acceptor, did not fully understand randomisation (participant 11)