Role | Managerial | Oversight | Responsive | |||||||
---|---|---|---|---|---|---|---|---|---|---|
Models | Patient/public representative on trial management group | Patient/public representative on trial steering committee | Patient/public representative on data monitoring committee | Patient research partners | Involvement on specific tasks facilitated through existing patient groups | Ad hoc participant meetings | Ongoing participant groups | Community advisory groups specific to study | Community advisory groups providing advice across several studies | Community meetings to advise trial teams |
Who is involved? | Patient or public representatives | Study participants | Community members | |||||||
Duration of involvement | Long term | One-off | Ad hoc | Long term | Ad hoc | |||||
Studies using this model | PROUD QUARTZ SORCE STAMPEDE | AALPHI BREATHER DART PIVOT PROUD | PIVOT PROUD | Cervical cancer meta-analysis | AALPHI BREATHER | BREATHER PROUD | DART MDP301 | MDP301 PROUD | MDP301 | MDP301 |