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Table 2 Models of involvement used in our case studies

From: Models and impact of patient and public involvement in studies carried out by the Medical Research Council Clinical Trials Unit at University College London: findings from ten case studies

Role Managerial Oversight Responsive
Models Patient/public representative on trial management group Patient/public representative on trial steering committee Patient/public representative on data monitoring committee Patient research partners Involvement on specific tasks facilitated through existing patient groups Ad hoc participant meetings Ongoing participant groups Community advisory groups specific to study Community advisory groups providing advice across several studies Community meetings to advise trial teams
Who is involved? Patient or public representatives Study participants Community members
Duration of involvement Long term One-off Ad hoc Long term Ad hoc
Studies using this model PROUD QUARTZ SORCE STAMPEDE AALPHI BREATHER DART PIVOT PROUD PIVOT PROUD Cervical cancer meta-analysis AALPHI BREATHER BREATHER PROUD DART MDP301 MDP301 PROUD MDP301 MDP301