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Table 2 Summary of interview topics

From: “I didn’t really understand it, I just thought it’d help”: exploring the motivations, understandings and experiences of patients with advanced lung cancer participating in a non-placebo clinical IMP trial

Interview 1 topics

Interviews 2 and 3 topics

Joining the trial

• Reasons for joining the trial

• Understanding of trial purpose, equipoise and different trial arms

• Preferences for and responses to trial arm allocation

• Understanding of and views on randomisation

• Experience of receiving and accessing information on the trial

Participating in the trial

• IG: Experiences of daily injections (administering injections, side effects, support, continuation)

• CG: Views on daily injections

• Experience of attending clinics

• Experience with and views on data collection processes

• Perceived benefits or disadvantages of being on the trial and suggestions for improvement

Treatment experiences and quality of life

• Length of time receiving treatment (e.g., chemotherapy)

• Understanding of treatment(s)

• Responses to treatment(s) (side effects and symptom management)

• Accessing information and support

• Impact of illness and treatments on quality of life (daily activities, hobbies, social and family life)

Symptom burden, management and quality of life

• Symptoms experienced

• Symptom management and coping

• Accessing support and information

• Impact on quality of life

• Responses to chemotherapy/other treatment

• Experiences of blood clots

Experiences of injecting (IG)

• Administering injections and adherence

• Side effects and effects on daily life

• Views on continuing with and/or stopping injections

Other health care and trial experiences

• Experience of receiving information on treatment and illness progression

• Experiences of visiting clinic and accessing health care support

• Contact with research nurse and experiences of trial-related appointments and information

End of study reflections (interview 3)

• Views on trial arm status at time of interview (compared with at start of trial)

•Perceived changes in symptoms and side effects over course of illness

• Differences between expectations of and experiences with treatment • General reflections on experiences of participating in the trial and views on participating in medical research

  1. CG, control group; IG, intervention group