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Table 2 Summary of burden assessment

From: Evaluating the effectiveness and cost-effectiveness of Dementia Care Mapping™ to enable person-centred care for people with dementia and their carers (DCM-EPIC) in care homes: study protocol for a randomised controlled trial

Questionnaire Completed by Number of data points Mean time taken (min) Modal time taken (min) Range (min)
CMAI Staff proxy 24 07 10 (02–15)
NPI-NH Staff proxy 16 15 20 (08–24)
FAST Staff proxy 24 04 03 (02–14)
CDR Staff proxy 23 06 05 (03–12)
DEMQOL Staff proxy 24 09 05 (04–17)
EQ-5D Staff proxy 24 03 03 (02–07)
QUALID Staff proxy 24 07 07 (04–20)
Total Staff proxy   53 67 (34–74)
EQ-5D Resident 21 06 05 (02–28)
QOL-AD Resident 22 13 10 (05–20)
Total Resident   18 15 (12–30)
Visit details Relative/friend 8 02 01 (01–06)
DEMQOL Relative/friend 9 10 10 (01–30)
EQ-5D Relative/friend 9 04 05 (01–12)
QUALID Relative/friend 9 08 05 (01–20)
Total Relative/friend   26 22 (04–68)
Current comorbidities Researcher 24 05 02 (02–15)
Resource Use Form Researcher 22 10 10 (05–20)
Total Researcher   15 15 (07–30)
  1. CDR Clinical Dementia Rating Scale, CMAI Clinical Dementia Rating Scale, DEMQOL Dementia Quality of Life measure, EQ-5D EuroQol five dimensions, FAST Functional Assessment Staging of Alzheimer’ Disease, NPI-NH Neuropsychiatric Inventory-Nursing Home, QUALID Quality of Life in Late-Stage Dementia, QOL-AD Quality of Life in Alzheimer’s disease measure