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Table 2 Summary of burden assessment

From: Evaluating the effectiveness and cost-effectiveness of Dementia Care Mapping™ to enable person-centred care for people with dementia and their carers (DCM-EPIC) in care homes: study protocol for a randomised controlled trial

Questionnaire

Completed by

Number of data points

Mean time taken (min)

Modal time taken (min)

Range (min)

CMAI

Staff proxy

24

07

10

(02–15)

NPI-NH

Staff proxy

16

15

20

(08–24)

FAST

Staff proxy

24

04

03

(02–14)

CDR

Staff proxy

23

06

05

(03–12)

DEMQOL

Staff proxy

24

09

05

(04–17)

EQ-5D

Staff proxy

24

03

03

(02–07)

QUALID

Staff proxy

24

07

07

(04–20)

Total

Staff proxy

 

53

67

(34–74)

EQ-5D

Resident

21

06

05

(02–28)

QOL-AD

Resident

22

13

10

(05–20)

Total

Resident

 

18

15

(12–30)

Visit details

Relative/friend

8

02

01

(01–06)

DEMQOL

Relative/friend

9

10

10

(01–30)

EQ-5D

Relative/friend

9

04

05

(01–12)

QUALID

Relative/friend

9

08

05

(01–20)

Total

Relative/friend

 

26

22

(04–68)

Current comorbidities

Researcher

24

05

02

(02–15)

Resource Use Form

Researcher

22

10

10

(05–20)

Total

Researcher

 

15

15

(07–30)

  1. CDR Clinical Dementia Rating Scale, CMAI Clinical Dementia Rating Scale, DEMQOL Dementia Quality of Life measure, EQ-5D EuroQol five dimensions, FAST Functional Assessment Staging of Alzheimer’ Disease, NPI-NH Neuropsychiatric Inventory-Nursing Home, QUALID Quality of Life in Late-Stage Dementia, QOL-AD Quality of Life in Alzheimer’s disease measure