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Table 1 Summary of assessments

From: Evaluating the effectiveness and cost-effectiveness of Dementia Care Mapping™ to enable person-centred care for people with dementia and their carers (DCM-EPIC) in care homes: study protocol for a randomised controlled trial

Assessment Type Method of completion Timeline
Screening Baseline 6 months 16 months
Care home eligibility CRF Researcher assessment X    
Training review CRF Researcher assessment X    
Dementia awareness training CRF Dementia awareness trainer X    
Resident screening (demographics) CRF Researcher assessment X    
Staff mapper screening CRF Researcher assessment X    
Consent (staff mapper, resident (includes personal/nominated consultee), staff proxy informant, RF proxy informant) Consent Form Self-completion (witnessed) X    X
Participant eligibility (staff mapper, resident, staff proxy informant, RF proxy informant) CRF Researcher assessment X    X
Participant contact details (resident, staff proxy informant, RF proxy informant) CRF Researcher assessment X    X
Cohen-Mansfield Agitation Index (CMAI) abridged Questionnaire booklet Independent researcher observations (R)   X X X
Pittsburgh Agitation Scale (PAS) Questionnaire booklet Independent researcher observations (R)   X X X
Care home manager demographics Questionnaire booklet Researcher interview (CM)   X X X
Care home demographics Questionnaire booklet Researcher interview (CM)   X X X
Group Living Home Characteristics (GLHC) Questionnaire booklet Researcher assessment (CH)   X X X
Environmental Audit Tool (EAT) Questionnaire booklet Researcher observations (CH)   X X X
Quality of Interactions Schedule (QUIS) Questionnaire booklet Researcher observations (R/S)   X X X
Staff proxy informant demographics Questionnaire booklet Researcher interview (SP)   X X X
Resident demographics Questionnaire booklet Researcher assessment   X X X
RF proxy informant demographics Questionnaire booklet Researcher interview (RF)   X X X
Cohen-Mansfield Agitation Index (CMAI) Questionnaire booklet Researcher interview (SP)   X X X
Neuropsychiatric Inventory (NPI-NH) Questionnaire booklet Researcher interview (SP)   X X X
Functional Assessment Staging (FAST) Questionnaire booklet Researcher interview (SP)   X X X
Clinical Dementia Rating (CDR) Questionnaire booklet Researcher interview (SP)   X X X
DEMQOL-Proxy Questionnaire booklet Researcher interview (SP/RF)   X X Xa
EQ-5D-5 L Questionnaire booklet Researcher interview (SP/RF/R)   X X Xa
QUALID Questionnaire booklet Researcher interview (SP/RF)   X X Xa
QOL-AD Questionnaire booklet Researcher interview (R)   X X X
Resident comorbidities Questionnaire booklet Researcher assessment   X X X
Health care resource use Questionnaire booklet Researcher assessment   X X X
Prescription medications CRF Researcher assessment   X X X
Resident registration Questionnaire booklet Researcher assessment   X   X
Staff booklet Questionnaire booklet Self-completed (S)   X X X
General Health Questionnaire (GHQ-12) Questionnaire booklet Self-completed (S)   X X  
Sense of Competence in Dementia care Staff (SCIDS) scale Questionnaire booklet Self-completed (S)   X X X
Safety reporting CRF Researcher assessment   Monthly following randomisation
RUSAE Report CRF Researcher assessment   As highlighted.
    Mapper training Cycle 1 Cycle 2 Cycle 3
Mapper training CRF DCM™ trainer X    
DCM™ adherence Questionnaire booklet/CRF DCM™ expert/ independent reviewer   X X X
DCM™ briefing summary CRF CH mapper   X X X
DCM™ feedback summary CRF CH mapper   X X X
  1. Key: CRF Case Report Form, CH care home observations, CM care home manager, DEMQOL-Proxy Dementia Quality of Life measure – proxy version, EQ-5D-5 L EuroQol five dimensions, five levels, QUALID Quality of Life in Late-Stage Dementia, QOL-AD Quality of Life in Alzheimer’s disease measure, R resident, RF relative/friend proxy informant, RUSAE Related Unexpected Serious Adverse Event, S staff, SP staff proxy informant, Xa – only for relative/friend informants consented at baseline and still meeting eligibility criteria