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Table 1 Beneficiaries of increased client understanding of their glaucoma

From: The Health Of Patients’ Eyes (HOPE) Glaucoma study. The effectiveness of a ‘glaucoma personal record’ for newly diagnosed glaucoma patients: study protocol for a randomised controlled trial

Beneficiaries

Reasons

Patients/clients

Receive appropriate knowledge, support and motivation to manage their condition to remain sighted for their lifetime.

Family and caregivers

Glaucoma can be hereditary. Significant life-changing effects to family and/or caregivers if visual loss is not prevented. If relative remains sighted for their lifetime, burden of care is reduced.

Medical and nursing staff in acute care

Clients carry an individualised summary of the current state of their glaucoma thus increasing communication and continuity of care.

Ophthalmic department and organisation (the Acute Trust)

Increased capacity to care for engaged glaucoma clients, resulting from good resource use and high-quality service.

General practitioners and community optometrists (primary care)

Glaucoma clients successfully self-manage their care, and can share their eye summary and health state with primary care healthcare professionals.

Local healthcare economy

Clients diagnosed with a long-term sight-threatening condition are managed within current resources, and the burden of visual disability within the community is curbed.

Clinical nurse glaucoma specialist

Job satisfaction. Professional kudos. Sense of value to all those above, but especially clients. Enjoy sharing knowledge and skills and supporting client group.